*tap tap* This thing on?
I’m sorry it’s been so long since I updated you all! We’ve just been busy enjoying summer and less frequent trips to the hem/onc clinic and normal life.
If you’ve been following Brock’s facebook page, you know he’s made great strides in re-learning how to eat. So much, in fact, that he had his feeding tube removed 3 days ago!
In case you haven’t been around since October 2009, Brock quit eating shortly after he was diagnosed with ALL. Then he moved to the pediatric intensive care unit for 7 weeks, was put on a ventilator, and when he came off the vent, wouldn’t eat anything. He wouldn’t even put anything near his mouth. So it’s been a long, long road with YEARS of therapy to get him to the point where he eats enough calories by mouth. We are forever thankful for the 2 speech pathologist who have changed his life.
That doesn’t, however, mean that his feeding issues are over. He still goes to feeding therapy twice a week. He still has strong aversions to many types of food. I imagine it will be years before he ever eats like a “normal” child.
BUT. He eats enough to not require a feeding tube and we are ecstatic. And so is he. He’s SO proud of himself and tells everyone he sees about how he got his “tubey” out.