Brock Rocks

January 31, 2013

Finally

Filed under: Uncategorized — Vanessa @ 8:20 pm

A day that, for a time, we truly thought we would never see.

And you’re all invited.

BrockStar4by6

January 15, 2013

Evermore

Filed under: Uncategorized — Vanessa @ 9:14 pm

Thank you for praying, friends. Over and over and over God has been faithful to answer. I don’t understand it but I’m so thankful.

Brock came home from the hospital last night. FINALLY recovered from a 2+ week long tummy bug.

Jay has had the most mild case of the flu in history. He only had a fever for 1 day and has just felt a little tired since then. I’m so thankful because I cannot manage this crazy life without him and his help. He does so much more than you know.

Reese is still sick. After 5 days on antibiotics her ears weren’t any better. We’re trying a new antibiotic now and if she doesn’t show improvement in a few days we’ll have to go see an ENT.

The good part about the last 3 weeks of sickness that our family has endured is that it’s taken my mind off these last few months of chemo. It’s caused time to speed up and I can’t believe Brock only has 3.5 weeks of chemo left! 3.5 weeks! I really can’t even believe it. I hope it doesn’t sound faithless to admit this, but there were times (I’m looking at you, November 2009) when I truly did not believe we’d make it to the end of treatment. And here we are. I’m amazed. We are thankful every day for the Lord’s mercies on our family. I posted this line from a song on Facebook last week:

“Every step we are breathing in your grace. Evermore we’ll be breathing out your praise.”

It sums up exactly how I feel about the last 3.5 years.

20130115-211324.jpg

January 12, 2013

More prayer requests

Filed under: Uncategorized — Vanessa @ 10:45 am

In case you missed the last post, Jay has the flu.

Prayer Requests:
– that Jay would recover VERY quickly. Like, supernaturally-only-God-can-do-this kind of quickly.
– that Brock, Jaycie, Reese, and myself will not get the flu.
– that we will get moved to a bigger room so that Reese (who is nursing) can stay up here with me.
– that Brock’s gut will start working. (that’s what’s keeping us here)
– wisdom for the doctors
– rest and patience and provision for our extended family as they step in and help care for the girls.

January 11, 2013

Bad to worse

Filed under: Uncategorized — Vanessa @ 9:30 pm

Brock’s still in the hospital.

Jay has the flu.

January 10, 2013

An update and prayer requests

Filed under: Uncategorized — Vanessa @ 3:40 pm

We’re back at our second home – the hem/onc floor at Children’s. Brock’s had diarrhea for almost 2 weeks and we’re just not able to keep him adequately hydrated at home. They’ve run lots of tests (norovirus, c-diff, etc) and they’ve all come back negative. We did an X-ray of his belly this morning and the surgeons have ruled out any kind of obstruction. A few doctors have told me they think he has an ileus and a few others have said they think he just had a virus that has disrupted his intestines ability to absorb his formula (from his tube feedings). We’re waiting to hear from the GI doctors about whether or not they want to switch him to a formula that’s partially broken down.

Prayer Requests:
– that the doctors would have wisdom in what’s causing the symptoms and the best way to treat them.
– that Brock would be happy while he’s here at the hospital. Despite all the time he’s spent in a hospital, he doesn’t remember much of it and isn’t used to it. The older he gets, the harder this is on him.
– Reese has a double ear infection and is pretty miserable.
– I’ve had pain in my thumb/wrist for over 2 months now. I finally went to the doctor yesterday and got a steroid and a fancy new spica cast. Pray that those 2 interventions help because the next step would be surgery.
– Pray for Jaycie as she handles the stress of our family being separated and getting shuffled back and forth between parents and grandparents. (We couldn’t do this without our parents’ help.)
– Pray for Jay as he leads our family. We’re so thankful for him.

Thank you for loving us and praying for us.

Home but back again

Filed under: Uncategorized — Vanessa @ 9:37 am

Brock came home last night but we’re taking him back to the ER this morning. Still vomiting, diarrhea, dehydration. 2 weeks of it now. Appreciate your prayers.

January 8, 2013

Back in

Filed under: Uncategorized — Vanessa @ 8:14 am

Brock was admitted last night for dehydration. I’ll post more later.

January 5, 2013

One step closer

Filed under: Uncategorized — Vanessa @ 3:33 pm

Brock is FINALLY over this tummy bug. It lasted almost a full week and he’s lost over 2 lbs, but thankfully, he is feeling better.

20130105-150810.jpg
{getting fluids for dehydration on Thursday}

We checked in to the hospital on Friday morning for his, God-willing, LAST spinal tap and bone marrow aspiration. Can you believe, in the 3.5 years he’s been in treatment, this is the first time we’ve had a scheduled hospital stay? It’s crazy, really. He should’ve had plenty, but when those times came, we were just already there for fever/illness/blood infections. Walking the halls, Jay and I were overwhelmed with memories of time spent there.

20130105-151222.jpg
{We’ve walked literally hundreds of laps past this little mural on the wall, pulling Brock in a wagon.}

A funny little thing we do to note just. how. long. it’s been since Brock was diagnosed is observe the changes in the hospital during that time. The enormous atrium out front? They were just starting it the first time we walked in to the hospital. iPads for kids to use during procedures? They didn’t even exist, friends. This was the view from Brock’s room on Friday. None of that was there in October 2009.

20130105-151757.jpg
{The new children’s play area.}

So yeah. Being in the hospital on Friday was…surreal.

We checked in, got a room, switched rooms, got a bed, got fluids, signed consent, and went downstairs to the PICU to start the procedure.

The doctor that did the sedation was the same one that cared for Brock for weeks and weeks when he was in the PICU in 2009-2010.

20130105-153820.jpg
{Brock had a LOT of questions for the doctor about what he was doing.}

The procedure went wonderfully, despite the fact that getting Brock to sleep took 3 times the amount of drugs it normally takes to sedate a child his size. At one point the doctor told the PA (who was doing the actual procedures) that he had given Brock enough drugs to knock HER out – and he was still moving. He’s a tough kid.

20130105-154349.jpg
{Recovery}

People keep asking us when we’ll get the results. I haven’t even asked the doctors, and honestly, we’re not at all concerned about it. The bone marrow aspiration tells us what his bone marrow looked like at that exact moment – it’s no indicator of what might happen in the future. To be blunt, it could’ve been clear yesterday and have leukemia cells today. We’re praying God spares Brock from ever relapsing and we’re celebrating that this last major milestone is behind us.

So what’s left?

4 days of steroids
1 dose of iv chemo
35 days of oral chemo

Then a bell ringing ceremony and party! We’ll let you know as soon as we set the date!

January 2, 2013

FINAL spinal tap and bone marrow biopsy

Filed under: Uncategorized — Vanessa @ 6:03 pm

Brock is SO close to the end of treatment! His final spinal tap and bone marrow biopsy is this Friday!!!!!

He’s had a spinal tap every 12 weeks for the last 2.5 years (and several before that) to check for leukemia cells in his spinal fluid and administer chemo into his spinal fluid. He hasn’t had a bone marrow biopsy done since…I can’t remember. Sometime in the winter of 2009. The bone marrow biopsy is a lot harder on him than the spinal tap. Since he has a history of not doing well with conscious sedation, the procedures will be done in the PICU under the sedation team.

Pray with us that he sedates well for the procedures. Pray that his spinal fluid and bone marrow are completely clear of every last cancer cell!!!

Thank you, friends, for supporting us and loving us so well during these last 3+ years. God is so good.

January 1, 2013

Sick now and BIG day Friday.

Filed under: Uncategorized — Vanessa @ 11:09 pm

Hi friends. Thank you for letting me pop in and out of here so sporadically and still coming back to check on my boy.

Oh it’s been a week. First Reese was sick. With lots of ralphing and diapers and ralphing and laundry and showers.

20130101-225240.jpg

Then I made the mistake of telling Jay how shocked I was that in the 3+ years Brock’s been on treatment and alllll the times our family has had a tummy bug, he’s never gotten sick. Amazing!

You can guess what happened next.

We’re on day 3 of Brock being sick. The worst part is he has a fundoplication which makes it virtually (but not completely) impossible for him to vomit. He’s been vomiting over his fundo, which irritated his stomach/esophagus enough to cause it to bleed. Aaaaaaand that’s how he and Jay ended up celebrating New Year’s Eve in the ER.

20130101-225945.jpg

They gave him some fluids and Zantac and sent him home, 6 hours later. He’s spent most of today on the couch.

Brock gets the majority of his calories through a feeding tube at night. Because he’s been so sick, he hasn’t gotten any formula since Saturday night. Pray with us that he can tolerate his feeds tonight.

Thankfully, Jay, Jaycie and I haven’t gotten sick. (Although Jaycie was pretty sad when the boys had to go to the ER on NYE.)

20130101-230504.jpg

Brock gets chemo tomorrow and I have more to tell you about what’s happening Friday but it’s late. Tomorrow, friends.

Please pray for our friends, The McLaughlins. Their 7 year old daughter passed away right before Christmas. Our hearts have been so heavy for them.

Create a free website or blog at WordPress.com.