Brock Rocks

August 17, 2012

A snippet

Filed under: Uncategorized — Vanessa @ 8:04 pm

As I type I’m listening to Jay, Brock, and Jaycie play triominoes at the dining room table and my heart is full. I’m so thankful for my family and their health and the fact that we’ve been able to spend so much time at home in the last year. With the exception of one little overnight stay for observation, I think we’ve made it almost a year without being in the hospital. I remember when we were hoping to make it a month without having to go back.

Brock and Jaycie went to the ophthalmologist this week. Jaycie’s eyes were slightly worse than last year. He said he could write her a prescription but it would only be for about -0.5 (ha!) and that we didn’t REALLY need to get her glasses right now. Unless she starts complaining of symptoms we’ll wait and recheck them in a year. Brock’s exam was…ok. When the doctor covered his left eye (the one without the blind spots) he kept complaining that he couldn’t see – something that he didn’t do six months ago. 😦 The doctor recommended having him wear a patch on his good eye for 2 hours a day so that the muscles in the bad eye will get stronger. (It won’t change how well he sees out of that eye or the fact that he has blind spots.) Brock is not. a. fan. of the eye patch. Unless I want to torture him, we’re going to have to work up to 2 hours. So far we’ve made it 15 minutes at a time before I give in. His “no my not see!” cries break my heart. 😦

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This beautiful girl started first grade today and I can hardly believe it. It’s been almost 3 years since Brock was diagnosed, which means that Reese is close to the age that Brock was when he got sick, and Brock is close to the age Jaycie was. Jaycie is such a strong, resilient, kind girl and we’re so proud of her.

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And this girl? This girl will be one soon and I can’t even talk about it. She brings such joy to our entire family.

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Praying you have a wonderful weekend full of God’s blessings.

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August 1, 2012

This and that

Filed under: Uncategorized — Vanessa @ 10:52 pm

Monday night we went to a local swimming pool with the Oklahoma Children’s Cancer Association. It was so much fun. It might be my favorite part of the whole summer.

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Tuesday was more feeding therapy.

Wednesday morning Jay took the big kids to gymnastics while I took Reese to her 9 month well check. I’m playing it a little fast and loose with the word “well”, though. Poor darling has a double ear infection. Not that you could tell, what with her cheerful disposition and lack of fever and sleeping through the night. Thank goodness for easy babies.

After her appointment I met Jay to pick up Jaycie and Brock so we could go to Brock’s clinic appointment. Jay and I both thought he was just going for lab work, but we got a phone call that his oncologist wanted to talk to us about the results of his last ct scan. Which…umm…made us nervous. All we could think was “well if everything was fine, wouldn’t they just tell us that over the phone?”

Everything was fine. His ct scan looked “stable.” Not normal, but normal for him.

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after his last ct scan…FINALLY getting something to eat and drink

The only thing that was concerning is that his aspergillus galactomannan antigen lab has been high for several weeks now. (If you’re new around here, it’s blood work that kind of sort of but not really “measures” the fungal infection. Low is good and high is bad.) In the past, it would jump up really high and then be back to normal 2 weeks later. Well, now it’s staying high. His oncologist is going to talk to his infectious disease doctor about if we need to adjust his antifungal medication.

Please pray with us that this blood work will come back in a normal range next time.
Pray that his doctors would have wisdom regarding adjusting his medication. Pray that God would completely heal him from the fungal infection and the leukemia forever and ever amen.

Six months and six days left.

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