Brock Rocks

July 28, 2012

What a week!

Filed under: Uncategorized — Vanessa @ 12:51 pm

Monday – Brock met with the feeding therapist for the 3rd time. I feel like she really knows what she’s doing and I’m praying this helps him.

Tuesday – Jay took Brock to his CT scan. You guys. He did SO good. He’s had…20? CT scans and he’s had to be sedated for every one of them. This time the doctor that was there to do the sedation got called away right before it was Brock’s turn to go in. They decided to just let Brock try to do it on his own and he did great! I’m so proud of him! (And I’m so glad Jay was the one with him because I don’t think Brock would’ve done it for me).

On a related note, Jay’s family has worked really hard to get the Beads of Courage program brought to our hospital. We are so thankful for their work and donations. The program gives every pediatric cancer patient a bead to symbolize every single hospital stay, iv poke, port access, spinal tap, chemotherapy, X-ray, radiation, etc. As you can imagine, Brock has hundreds of beads. Because he was so brave and did the ct scan without sedation he got to pick out an Act of Courage bead to add to his strands. Here’s the one he picked.

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Wednesday – Brock had an appointment with his surgeon. This surgeon has done all 7 of the major surgeries Brock has had. Brock’s g tube (the tube that goes into his stomach that we use to provide him with nutrition) has been leaking for…well, ever really, but it’s been leaking worse the last few months. The surgeon suggested we try a different brand of g tube. We’ve ordered it and hopefully it will be in soon and fix the problem.

While we were there the nurse said I looked familiar and asked if she knew me from somewhere. Brock’s surgeon said “Oh you’ve probably just seen her around the hospital. I’ve been taking care of Brock for…hmmm..over a year now?”

I reminded him it’s been almost 3.

Thursday – another session with the feeding therapist.

Friday – Brock had physical therapy and occupational therapy in the morning. He made it about half-way through physical therapy and then became really lethargic, sweaty, and shaky. After his ‘episode’ last year (you know, the one where he stopped breathing and his heart stopped) Jay and I get really nervous if Brock acts anything other than normal. So we skipped the rest of therapy and headed to the ER. When we got there his blood sugar was low (50-something). Thankfully my dad met me there to help with the kids and he was able to get Brock some chips and chocolate milk. His blood sugar came up after a snack and they let us go home.

The ER must really take it out of you.

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Prayer Requests:

– The blood sugar thing is making me nervous. It doesn’t make sense for it to be that low after just 2 hours of not eating or drinking.
– Brock has an appointment with his ophthalmologist next month. Remember, in addition to being near sighted, he has blindness in his right eye as a result of the fungal infection. I *think* I’ve noticed a few times lately where his eyes aren’t tracking together. It’s something that the ophthalmologist has asked us to look for.

I pray you all have a nice weekend! Thank you for continuing to pray with us!

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