Brock Rocks

February 13, 2012

ct scan tomorrow

Filed under: Uncategorized — Vanessa @ 10:05 pm

i can’t even organize my thoughts enough to write this post because my heart is so heavy for a girl i went to high school with. her 7 year old son died suddenly, tragically, accidentally yesterday. i’ve thought of her all day and how she must be feeling. life is so hard. and so short. too short. i cannot even count how many children under the age of 15 that i know personally who have died in the last 2 years. it overwhelms me and makes me long for heaven. i’m clinging to this promise tonight and i pray that she is too.

“And God will wipe away every tear from their eyes; there shall be no more death, nor sorrow, nor crying. There shall be no more pain, for the former things have passed away.”
Revelations 21:4

brock has a ct scan at 8 tomorrow morning to check the status of the fungal infection. the fact that he’s recovering from rsv complicates things. he needs to be sedated and put on a ventilator for the ct scan but they’re hesitant to do that because of the rsv. the plan is for the doctor to listen to his lungs as soon as we get there and if they sound healthy enough then we’ll go through with the ct scan. if not, we’ll reschedule. he’s also having some labs drawn tomorrow that check the fungal infection (we do those every 2 weeks).

so brock is really doing well. his breathing continues to be stable and we are SO thankful that he’s been able to fight off the rsv without needing to be hospitalized. unfortunately, reese is sick now. the after-hours pediatrician checked her out on sunday and said that her lungs sounded ok. so her breathing is fine – she’s just coughing and congested. the bigger concern is that she hasn’t been nursing well.

so…

praises:
– that brock’s been able to fight of an illness AT HOME.
– that reese’s lungs/breathing are ok so far

prayer requests:
– please pray for my friend as she mourns the loss of her son
– pray that if they do the ct scan tomorrow, everything will go well. pray that he’ll have no problems with sedation and being put on or coming off the ventilator.
– pray that the scan would show good results – no active or worsening infection.
– pray that reese would get well and would start nursing more so that she doesn’t become dehydrated

thank you so much for continuing to pray with us. it’s been a long (almost) 2.5 years and we’re so thankful for those of you have walked this road with us. and guess what? (i should’ve put this under the praises). brock only has 1 year of chemo left!!

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February 10, 2012

Mending

Filed under: Uncategorized — Vanessa @ 12:44 am

Brock acts like he feels better every day. Praise the Lord! It feels strange to us for him to be sick but still be at home instead of the hospital. It’s definitely not something we take for granted.

Going to try to upload a video of him playing tonight. If it doesn’t work I’ll be back later to try again.

Thank you for continuing to pray with us!

Not working. 😦 Hope you’ll settle for a picture instead.

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February 8, 2012

RSV

Filed under: Uncategorized — Vanessa @ 9:26 pm

Brock’s hanging in there. He got a fever at 1am last night (or this morning, I suppose). Jay took him to the ER for blood cultures, CBC, and a chest X-ray and they made it back home around 5am. His chest X-ray looked normal (for him). If he gets another fever we’ll have to go back to the ER. His breathing has stayed stabled as well.

Several people have asked me if RSV is something that can be treated with antibiotics and he’ll just get better. In short, no. It’s a virus and so antibiotics won’t do anything to treat it. That’s why it’s so dangerous for someone like Brock who is immune compromised. The only way to get rid of it is for your body’s immune system to fight it off and his immune system doesn’t work well because of the chemo. We’re also worried about Reese getting it because young babies have immature immune systems and often have trouble fighting it off.

Praises:
– the boys got to come home from the ER
– Brock’s breathing has remained stable
– Reese and Jaycie still seem unaffected

Prayer Requests:
– pray for no more fevers
– pray that his little immune system will work as best it can
– pray that his lungs stay healthy and his breathing remains stable
– pray that the girls, especially Reese, wouldn’t get it

And now for a funny little story…

A very nice girl approached me at Target yesterday and told me she knew who I was from this blog or maybe Brock’s Facebook page…I’m not sure.

When I say ‘girl’ I mean she was not much younger than me – in her twenties I’m sure. But I didn’t want you to think I meant a little girl. What else would you say? Lady? That sounds too old…

Anyway.

She told me she knew me and had been praying for Brock and for us. She was so kind and I hope I was kind in return. Moments like that have happened to me several times (that was the 2nd time at Target!) and I always get so awkward and don’t know how to respond. My husband, sister, and best friend would all tell you that sometimes I come across as rude even when I truly don’t mean to be! Knowing that gives me even more anxiety so I TRY to be even nicer but then I feel even more awkward and I’m just never sure if I come across the right way.

Anyway.

The funny part? So after she told me she knew me and had been praying for us I asked her name. When she said “Vanessa” I started to say (much too enthusiastically, I’m sure) “That’s my name too!!” (because really, how often do you come across someone with the name Vanessa) but before I could get the sentence out I realized….uh…she already knows that.

I’m such a dork.

So if you see me at Target or Barnes and Noble or Crest PLEASE stop me and say hi. God uses you to minister to me in those moments and I’m always so blessed by it. But PLEASE don’t be offended if I act like a big awkward dork. 🙂

February 6, 2012

Oh February. You did it again.

Filed under: Uncategorized — Vanessa @ 9:56 pm

February 2009 – Brock is 3 months old and gets RSV. Spends a night in the ER getting fluids and does breathing treatments at home.

February 2010 – Brock comes home after spending 19 weeks in the hospital. He is 1 year old and can’t eat, talk, roll over, crawl, or walk. But at least he’s home – for a few weeks out of the month.

February 2011 – Brock is hospitalized for the flu the day before Jaycie’s birthday party.

February 2012 – Full circle. Brock has RSV.

You guys. February has it out for us. If it weren’t for Jaycie’s birthday I’d want to skip the whole month. And poor darling has had her birthday interrupted in some way or another every single year since her brother was born.

Jay and I try really hard to praise Him in the storm, but honestly, I was having a hard time today. It just stinks. I hate that he’s sick. I hate that we have to use the nebulizer. We JUST finished a round of steroids (as part of his leukemia treatment protocol) and now we’re going to have to do more steroids. I hate steroids. I’m so so SO worried about the baby getting RSV. So worried.

I was cranky. Jay could tell you. 😉

So I started praying that God would change my attitude – that He would show me something to be thankful for – that I WOULD be able to praise Him in the storm, even when I didn’t feel like it.

So:
– Brock’s had NO fever and therefore been able to avoid a trip to the ER and/or a hospital stay.
– Despite how crappy his lungs are, the RSV hasn’t caused him to have any problems breathing.
– The baby ISN’T sick.

If you know me well you know I’m NOT an optimist. Which means it took everything I had not to type “yet” at the end of each of those sentences. But I AM thankful and praising God for those things.

Please pray with us that God will protect Reese from getting sick, that Brock’s immune system will be able to fight off this virus, and that he won’t have any difficulties breathing.

February 1, 2012

More pictures and an update

Filed under: Uncategorized — Vanessa @ 9:27 am

Brock’s eye doctor appointment yesterday went really well. He continues to see relatively well, despite the blind spot in his right eye. He’s nearsighted and has an astigmatism (and we’ve known that for over a year) so the doctor said Brock’s finally ready to get glasses.  Won’t he be the cutest bespectacled three year old ever?!

I was SO proud of how well Brock did at the appointment. We’ve been seeing the same opthamologist ever since Brock was 12 months old and in the PICU the very first time. (At that time they were checking to see if the fungal infection had infiltrated enough to require an injection (!!!) into his eyeball.) Every. single. time. we’ve seen this doctor over the last 2+ years I’ve had to hold Brock down in order for Dr. T to examine his eyes. Yesterday he climbed right up into the chair by himself and let Dr. T look in his eye like it was no big deal! I’m not sure you can really appreciate that fact  unless you had seen how traumitizing eye exams used to be for him. So proud!

I’m hoping to having time to come back and post a recap of our trip but in the meantime, here are some more pictures.

 

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