Brock Rocks

August 26, 2011

home and now what?

Filed under: Uncategorized — Vanessa @ 9:17 am

Brock’s sitting next to me eating crackers and watching Signing Time AT HOME!

His eye looks much better and he’ll finish up this round of antibiotics in about a week.

The infectious disease doctor came by on Wednesday evening to talk with us.  She said that his CT scan looked unchanged from the last one.  That’s good news!  Everything that shows up on the scan looks like old scarring from the fungal infection and not new, active infection.

But! That doesn’t really line up with the fact that his galactomannan antigen lab came back so high.  His levels are normally around 0.2 – 0.4.  The last one was 1.55.  A high number indicates active fungal infection.

No one knows why the lab level is so high but the ct scan looks so good.  And the fact that those two things don’t line up makes it hard to know how to treat him.  They drew blood to test the level again and it takes about a week to get back.  If it comes back higher than normal then we’ll probably have to start him on iv antifungals again.  Please pray that it returns to a normal level!  Having his port accessed all the time and having to do iv meds at home makes it hard for him to live like a normal 2 year old boy.  Not only that, but that particular medication is really hard on his kidneys and liver.

Pray for wisdom for the doctors and for Jay and I. 

Brock’s demanding more crackers.  🙂  More later.

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2 Comments »

  1. So thankful Brock can be at home again. Praying for low levels on his outstanding lab work.
    Love you

    Comment by Connie Huffmon — August 26, 2011 @ 1:13 pm

  2. Well a good appetite is a good sign. Hopefully the counts will straighten out soon
    We will keep praying
    God Bless,
    >

    Comment by Barbara J Harding Whipple — August 26, 2011 @ 7:42 pm


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