Brock Rocks

July 21, 2011

July 21, 2011

Filed under: Uncategorized — Vanessa @ 9:05 pm

So the mysterious skin thing ended up being ‘staph scalding skin syndrome.’  It was horrible and I pray he never gets it again.  I didn’t take pictures of the worst days, but it looked like his face and hands had been burned.  And then the skin started peeling off and bleeding.  😦  But thankfully he is MUCH better now.  Almost completely back to normal.

On Tuesday he had an ultrasound to re-check the blood clot in his leg (from last April) and Yay! because it’s gone but Boo! because we still have to keep giving him shots of lovenox for 3 more months to make sure it doesn’t come back.  I’m hoping they doctors will tell us soon that we can decrease his dose to just once a day instead of twice a day.

We also met with the local public schools this week to discuss transitioning him from the state funded early intervention program to the public school program (which has to be done when he turns 3 in October) in order to keep receiving services like speech and physical therapy.  We will do a series of developmental tests on him next month to see which services he qualifies for.  The options are a wide range from just getting speech therapy at the school once or twice a week, to being placed in the developmentally delayed preschool classroom 5 days a week.  Pray that the tests give clear answers as to what his needs are and that Jay and I would have wisdom in deciding what therapies are best for him.

Brock’s having his first sleep-over at Grammie and PaPa’s this weekend so pray for no fevers and an uneventful stay!

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5 Comments »

  1. Thank you Vanessa for the update. I think about you all very often and keep you all in my prayers.

    Comment by Nancy — July 21, 2011 @ 9:20 pm

  2. So glad they found out what was causing it, and glad it is over (praying it never comes back along with you)
    We will also pray for guidance as he goes through the testing to put him where he will get the most help in school
    God Bless,
    >

    Comment by Barbara J Harding Whipple — July 21, 2011 @ 9:24 pm

  3. YEA!!! I am SOOO glad Brock is better!!! I have never heard of that infection. How terrible!!! I am sooo glad the blood clot is gone!! I pray he will be OFF the Lovenox soon. It is SOOOOOOOOOOOOO expensive!!!

    I pray for a GREAT rest of the summer!!
    ☆~*~ღ~*~ ღ~*~ღ~*~☆
    ♥♥ Love ya!! ♥♥
    C.O.L.E.’s Foundation
    (Caring Openly, Loving Eternally)
    http://www.colesfoundation.org
    http://www.colespages.org
    Email: sandy@colesfoundation.com
    Sandy Daron

    Comment by Sandy Daron — July 21, 2011 @ 9:25 pm

  4. Good morning sweet wonderful little buddy, so very grateful to the Lord that you are much better from all that nasty stuff which must have been awful to go through. Sorry about those shots too but trusting God to keep you protected in His powerful hands.

    Sending truckloads of love and hugs.

    “An infinite God can give all of Himself to each of His children, He does not distribute Himself that each may have a part, but to each one He gives all of Himself as fully as if there were no others” – A. W. Tozer

    ♥ ♥ ♥ ♥ *GOD LOVES YOU* ♥ ♥ ♥ ♥

    In His Love,

    Caterina
    C.O.L.E.’S FOUNDATION MD Rep
    caterina@colesfoundation.org
    C.O.L.E. (Caring Openly, Loving Eternally) Prayer Team
    http://www.colesfoundation.com http://www.colespages.org
    24/7 Prayer Line 888-365-COLE (2653)
    http://www.kidsunitetofight.com

    “There are many Americans who are clever and fearless, but the trouble is many are small children fighting an ugly disease.”

    Comment by Caterina Grove — July 22, 2011 @ 7:29 am

  5. vanessa,
    Thank you for keeping us inform on Brock progress, Amy keep me updated also. Just know that everytime I see my grandkids I say a little prayer for Brock.

    Deborah

    Comment by Deborah Smith — July 31, 2011 @ 5:57 pm


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