Brock Rocks

July 21, 2011

July 21, 2011

Filed under: Uncategorized — Vanessa @ 9:05 pm

So the mysterious skin thing ended up being ‘staph scalding skin syndrome.’  It was horrible and I pray he never gets it again.  I didn’t take pictures of the worst days, but it looked like his face and hands had been burned.  And then the skin started peeling off and bleeding.  😦  But thankfully he is MUCH better now.  Almost completely back to normal.

On Tuesday he had an ultrasound to re-check the blood clot in his leg (from last April) and Yay! because it’s gone but Boo! because we still have to keep giving him shots of lovenox for 3 more months to make sure it doesn’t come back.  I’m hoping they doctors will tell us soon that we can decrease his dose to just once a day instead of twice a day.

We also met with the local public schools this week to discuss transitioning him from the state funded early intervention program to the public school program (which has to be done when he turns 3 in October) in order to keep receiving services like speech and physical therapy.  We will do a series of developmental tests on him next month to see which services he qualifies for.  The options are a wide range from just getting speech therapy at the school once or twice a week, to being placed in the developmentally delayed preschool classroom 5 days a week.  Pray that the tests give clear answers as to what his needs are and that Jay and I would have wisdom in deciding what therapies are best for him.

Brock’s having his first sleep-over at Grammie and PaPa’s this weekend so pray for no fevers and an uneventful stay!

July 3, 2011

Hospital

Filed under: Uncategorized — Vanessa @ 2:47 pm

Short post bc I don’t have a computer.
In the hospital for iv meds. In isolation until we can rule out chicken pox. Tested again for herpes simplex virus 1 and also for hand foot and mouth.
Tylenol with codeine finally relieved his pain.
Praying they determine what it is and he responds to meds. All can be very serious in immune compromised people.
Getting a blood transfusion right now bc hemaglobin was low.
More later. Thanks for praying.

July 2, 2011

ouch

Filed under: Uncategorized — Vanessa @ 11:49 am

Brock woke up yesterday morning with bumps all around his mouth and on the backs of his hands.  We called the hem/onc clinic because we’d heard that hand foot and mouth disease had been going around.  Because of the holiday they didn’t have anyone that could see him so they told us to take him to the ER.  I called back and said “can’t we just take him to his regular pediatrician for this??”  Their response: “Oh. Yeah! We forget he has a regular pediatrician.”

So thankfully, for the first time in over a year and a half, we avoided the ER and could go to the peds office like normal people.

Brock’s ped and another dr in the practice agreed that it didn’t look like hand foot and mouth but that it looked like a REALLY severe case of cold sores (herpes simplex virus 1).

You’ve had a cold sore before, right?  Most people have.  You know how bad it hurts to have just 1 on your lip.

Brock has them all over his face, ears, neck, scalp, hands, and even a few on the bottoms of his toes. 

Poor baby is so miserable.

Please pray that the medicine works and that they don’t get worse (which would require hospitalization).

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