Brock Rocks

April 10, 2011

more updates

Filed under: Uncategorized — Vanessa @ 12:15 pm

I have had the HARDEST time logging on to wordpress at the hospital.  Hopefully I can get the entire update written up…..

So there are lots of details about Thursday that I left out.  Some because I don’t want to remember them (like what it was like to get him out of the car and run inside) but there are other things that I might want to remember later.  Feel free to skip this part….
– his temp was about 96 when we got to the ER and kept dropping to at least 94.  they tried warm blankets but there isn’t much room for that when you have to keep doing chest compressions or try twice to put in fem lines.  they put him on a warming pad once we got to the icu.  his temp came up and then spiked to 104.5 after we started ambisome so we switched the warming pad for a cooling pad.
– his blood sugar was really high for awhile.  in the er I heard someone say it was over 1000.  in the icu it was over 700 and he was placed on an insulin drip.
– he was on an epi drip for about 12 hours.
– at one point in the er jay was next to brock’s head talking in his ear and i was kind of standing around in shock…until i looked up and saw our favorite oncologist in the background with tears in his eyes.  that brought me back to reality….and made me cry.
– the er team was amazing.  and 3 of the icu drs that we know and love came down to the er to work on him too.  one of whom was just getting off work and should’ve been going home to her own babies.  it was such a comfort having them there.
– there’s something to be said for having a chronically ill child.  we KNOW people here, and they know us.  when i ran into the er, screaming that he wasn’t breathing, it was comforting to know the resident that took him from my arms and started chest compressions.  it was comforting to know the respiratory therapist that bagged him for over an hour.  it was comforting to pray with one of our favorite hem/onc nurses.  it was comforting to have icu nurses come down to the er and check on him…comforting to have hem/onc nurses come to the icu to check on him…comforting to have the cleaning lady that we know tell me that she’s praying for him, that God is in control of this and that Jesus promised to carry our burdens for us.  we are so blessed by the people here.

Yesterday we able to wean Brock off the vent and remove the breathing tube.  PRAISE THE LORD!  They switched him over to a high flow nasal cannula (12 liters and 50%).  His respiratory rate was really high yesterday and over night and we were worried that he might have to go back on the vent but thankfully it’s slowed down a little this morning.  We’ve stopped all of his sedation meds and he’s been awake and trying to talk.  His first word after the tube was out was “no.”  🙂  Followed closely by “hold” – which I still haven’t been able to do b/c of the art line, but that’s coming out today, as well as the foley catheter, so I should be able to hold him soon.

He had a blood transfusion on Wed night and his platelet count has been dropping.  We’ll check it again tonight to see if it’s low enough to transfuse.  I’m a little concerned about that because his platelets haven’t been low in over a year.

We’ll try to start his tube feedings back today at a very slow rate.

I think the short term plan is to to continue to wean him from the oxygen and then once he’s more stable send him for a ct scan to confirm the fungal infection.  The long term plan is to treat with iv antifungals for a very long time and hold off on chemo for a very long time….possibly forever.

I know this post is so scattered….

Prayer Requests:
– that his breathing would continue to improve
– that his brain was/is protected from any potential damage
– that God would miraculously heal the fungal infection
– that the leukemia will stay in remission FOREVER
– that his kidneys would be protected from the damage caused by the anti-fungal medication

Praises:
– he’s breathing on his own!
– he’s awake and talking

The benefit concert and silent auction will still happen this Saturday at Putnam City Baptist Church in Oklahoma City from 3-5pm.  You can also still make donations through Brock’s GiveForward page at http://www.giveforward.com/brockrocks  And please, if you know someone that could use help, start a GiveForward page for them.  It’s free and easy to do and they will be so blessed by it.

Many thanks to our Sunday School class and families who have been providing food for us.  If you would like to help by bringing a meal to the hospital you can sign up at http://www.carecalendar.org and bring it to the 8th floor PICU.
Calendar ID: 30316
Security Code: 3356

Thank you so much for praying for us and supporting us.  We love you!

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10 Comments »

  1. It is very encouraging to read that he’s talking. I can’t imagine what you went thru, it hits too close to home. I agree, it’s nice knowing the staff. We don’t know them that well because Asher didn’t stay in the hospital as long as you all did nor did he have chemo, but it’s nice to see familiar faces and knowing they care very deeply about your child. The onco docs and the staff on the floor are amazing people. We will keep your family in our prayers and pray that Brock will kick this fungal infection for good.

    Comment by britta — April 10, 2011 @ 12:38 pm

  2. One of these days I’m going to learn to read your updates with a box of kleenex nearby.

    Praying for you all.

    Comment by melissa — April 10, 2011 @ 12:42 pm

  3. Thank you for updating us- I know you have so much to do, but we are all so appreciative to know what’s going on. We are praying for Brock at home & at work-your post today brought tears to my eyes. I can’t even imagine what you have been through. May God continue to heal Brock & give you the strength to handle it all.

    Comment by Shannon Edwards — April 10, 2011 @ 12:43 pm

  4. Praises for sure, we are all still praying, you are blessed with a large caring community of specilists in each area at the hospital, another big praise a built in support system.
    God Bless,

    Comment by Barbara Whipple — April 10, 2011 @ 12:43 pm

  5. From one hospital to the other, thank you for writing about how “There is something to say about a chronically ill child”. I broke down when I read this message. As we sit in the hospital ourselves, we know we are loved by these nurses and doctors. They were put on this earth to provide love, support and healing to us. Our in home physical therapist stopped by today to see Jayden. Our Nurse Clinician stopped by yesterday on her way home from her son’s track meet. I ran into one of our favorite nurses in the cafeteria and she made it a priority to stop by and see Jayden when she had a break. These professionals could just come in just do their jobs but instead, they decide to provide love, support and strength to Jayden and to us as parents. In my prayers for Jayden, I add a prayer for Brock. I don’t wish this on anyone and prayers are what I can give at this point.
    – When you have a moment (if there is such thing) I wanted to know more about the GiveForward. I was putting together a spreadsheet of bills, parking, mileage, etc. for this year already and it is a bit overwelming.
    Love from North Carolina Duke Hospital!
    Layna Langley

    Comment by Layna Langley — April 10, 2011 @ 1:23 pm

  6. Vanessa,

    I am soo glad Brock has improved. I can’t imagine how distraught you must have been. I pray Brock will continue to improve and the fungal infection will be targeted soon.

    ♥♥ Love ya!! ♥♥
    C.O.L.E.’s Foundation
    (Caring Openly, Loving Eternally)
    http://www.colesfoundation.org
    Email: sandy@colesfoundation.com
    Sandy Daron

    Comment by Sandy Daron — April 10, 2011 @ 4:43 pm

  7. Tears are happening again. Both sadness and tears of joy for the progress he has made. Hold, a one syllable word that speaks volumes. I am in total agreement with your prayer requests and also that you will be able to hold your precious boy very soon.

    Comment by Valerie Olmstead — April 10, 2011 @ 6:33 pm

  8. What great praises to be giving & praying tonight for u to hold that sweet boy of yours. In our thoughts & prayers continually.

    Comment by Adrian — April 10, 2011 @ 10:50 pm

  9. it must be a relief to have familiar, trusted faces caring for your baby. i think the terror would be magnified a zillion times over to hand him over to a stranger. i’m thankful you have this, at least. and thankful he’s breathing and talking.

    you and your fam are constantly on my heart and mind. praying and expecting a miracle!

    Comment by mrs. darling — April 11, 2011 @ 12:21 pm

  10. Venessa, I’m so happy Brock is doing better! You guys are in my thoughts and prayers daily. May GOD bless you and keep you…

    Sumer Melton

    Comment by Sumer Melton — April 14, 2011 @ 12:28 pm


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