Brock Rocks

February 26, 2011

Celebrity

Filed under: Uncategorized — Vanessa @ 11:22 pm

Hey there.  We’re settling back in at home.  Readjusting to doing iv antibiotics 6 times a day.  But very, very thankful to be doing them at home instead of in the hospital.

Last Friday, before Brock spiked a fever and ended up in the hospital, our family was at a local high school telling Brock’s story to a group of kids that had raised over $250,000 for the Children’s Hospital Foundation.  It’s a cause that’s very dear to our hearts, as they chose Brock to be a “miracle child” and participate in the 2011 calendar shoot. 

I thought you all might like to see the write up that one of the local newpapers did on the event.  They did a good job of summarizing Brock’s story (and even included a cute picture of him).

You can read it here.

And there’s another article here that mentions Brock.

However, the highlight of the day might’ve been when the entire school clapped and cheered for Jaycie because it was her 5th birthday.  She was beaming.

{You can help Brock and his family by donating to the Brock Rocks fundraising page on the Give Forward website. Thank you!}

February 23, 2011

Home

Filed under: Uncategorized — Vanessa @ 12:31 pm

We made it home late last night! Yay! Brock’s counts had come up a little bit and his chest xray looked fine. We’ll be doing 2 kinds of iv antibiotics at home for the next 10 days, but at least we’re not stuck at the hospital! Brock was going crazy not being able to leave the room.

February 21, 2011

xray, white count, and give forward

Filed under: Uncategorized — Vanessa @ 1:39 pm

– Brock needed blood yesterday. {Have you donated blood lately? Please do!}

– He had another chest xray this morning.  Still waiting on the results.

– His AGC {measure of his immune system} was down again to 100-something.  We need it to be above 500.

Things that need to happen for us to go home:
– no more fevers
– AGC up to 500 (or at least signs that it’s on it’s way up)
– chest xray to look clear
– blood cultures from saturday to show no growth for 48 hours

Even then, we’d be going home to do iv anbitiocis multiple (4? 6?) times a day.

I don’t think I’ve explicitly pointed this out, but Brock’s aunt has rallied our family and friends to donate to the Brock Hart Medical Fund at giveforward.com.  We spend about $1,000 each month on medicine, tube feeding supplies, copays, and past medical bills and the money that’s been raised will be a HUGE blessing to us.  Brock is featured on the Give Forward home page today and you can also see his personal page here.  Thank you so much for all you’ve done for us!  You make this road infinitely easier to travel and God has used you all to bless us many times over.  Thank you!

{Give Forward is a place where anyone can create a fundraiser for any number of reasons. Do you know someone with significant medical bills? You can be a blessing to them by starting a Give Forward page for them!}

February 20, 2011

sun morning update

Filed under: Uncategorized — Vanessa @ 11:20 am

they identified the type of bacteria as psuedomonas.  the repeat cultures are still negative (praise the Lord!).  praying it stays that way so that he doesn’t have to have his port replaced.

he’s feeling remarkably well for someone with both the flu and a line infection.

his chest xray from friday night showed that he might have some pneumonia on his left lung.  we’ll repeat the xray tomorrow.

February 19, 2011

Bad News

Filed under: Uncategorized — Vanessa @ 1:03 pm

Brock’s blood cultures came back positive for gram negative rods.

It’s a type of bacteria that’s relatively hard to treat (and hard to clear from his port).

If the repeat cultures stay the same he might have to have surgery to have his port removed.

Living in the Hospital

Filed under: Uncategorized — Vanessa @ 12:34 pm

It’s amazing how quickly we get out of the routine of living in the hospital. I hate that every time we start to feel a little bit normal, something new happens.

Brock tested positive for Flu A last night. He’s been lethargic for about a week now.

We took him to a local high school yesterday to tell his story because the school had raised over $250,000 for the Children’s Hospital Foundation (the people that nominated Brock to be a Miracle Child and be in the calendar)

He fell asleep on the way home and stayed asleep for another couple of hours after we got home.  When Jay got home from work he went to wake him up so we could go out to dinner for Jaycie’s birthday.

His temp was 104.

Jay and Brock left for the ER while Jaycie and I went to dinner with Jay’s parents. Right as we finished with dinner Jay called to say that he’d tested positive for flu, he was neutropenic (white count was dangerously low), and was being admitted for iv antibiotics.

Jaycie’s birthday party is today.

Thankfully, Jay’s mom is going to stay with Brock so he can be home for the party. I’m sure Jaycie will be sad that her Grammie isn’t there, though.

I took Jaycie to the dr this morning to make sure she didn’t have the flu also.  She doesn’t, but she (as well as Jay and I) are all taking Tamiflu just to be safe.  (Good grief! That stuff’s expensive! I had no idea.)

So.

Pray that Brock’s white count comes up quickly, that he doesn’t have any more fever, that his blood cultures all stay negative, and that his lungs stay healthy.

Pray that Jaycie has a good party today, despite the circumstances. Pray for wisdom and understanding for her.

Pray that Jay and I can get back into the swing of hospital-living quickly.

The doorbell just rang and someone had flowers and balloons sent to Jaycie for her birthday. The card’s not signed and she thinks it’s so cool that she has a secret admirer!

Thank you all so much for continuing to pray for us and support us. We could not do this without you!

February 18, 2011

Flu

Filed under: Uncategorized — Vanessa @ 8:52 pm

Brock has the flu. His white count is dangerously low and he’s being admitted to the hospital.

Today is Jaycie’s birthday – tomorrow her birthday party.

Will update more when I can form complete sentences.

February 16, 2011

One Year and Many Thanks

Filed under: Uncategorized — Vanessa @ 10:36 am

Think way back.  Before New Years’.  Before Thanksgiving.  Before Halloween.  All the way back to the beginning of October.  When the leaves were just starting to turn and the air was crisp and the hope of a beautiful fall and winter were spread before you.

Long time ago, huh?

Imagine only seeing your spouse for 10 minutes a day that entire time.  Imagine going from early October to mid-February and never having your entire family together for more than a few hours a week.  And even then, you don’t get to be at home with them.  You sit in a crowded hospital room with them and pray over your son whom the doctors have told you surely won’t live.

We walked into the hospital with Brock on October 6, 2009 and didn’t walk out with him until February 16, 2010.

That’s a long time.

But then, when we were stuck deep in the middle of it, we had no concept of how long it was.  It’s only now, one year from the day we first brought him home, that we can look back and see.

That’s a long time.

And how are we celebrating?  With a perfectly normal day.  The kids are at school.  Jay’s at work.  I’m at home, attempting to clean my entire house in 4 hours 3.5 hours.

God is good.

I wish I could look every one of you in the eyes and hold you by the shoulders and tell you “He. Is. Faithful.”

As we drove to the hospital on that October day I told Jay, “I know we’ll be ok.  I know, no matter what happens, even if Brock doesn’t live, we’ll be ok….I just don’t want this to be our road.”

And that’s still true.  I DON’T want this to be our road…Brock’s road.  I want him to be able to run and jump and talk and eat just like {almost} every 2 year old boy.  I want him to be able to fall down without worrying about what his platelet count is or take an extra long nap without worrying that his hemaglobin is low or get a fever without having to go to the ER.  I want to live without the underlying fear of relapse.

But.  But we have been so blessed along this road.  He. Is. Faithful.  We’ve grown and learned and loved more than we ever thought capable.  And God has used all of you, many times over, to be a blessing to us.

And now God is using all of you and our families to bless us again.  We are totally, utterly, humbly grateful.

http://www.giveforward.com/brockrocks

Thank you.  A million times over, thank you.

February 15, 2011

ok-ish

Filed under: Uncategorized — Vanessa @ 3:33 pm

cbc was ok. so yay! for not needing blood but boo! for not knowing why he’s feeling so yucky.

clinic

Filed under: Uncategorized — Vanessa @ 12:15 pm

going to clinic for a cbc.  his fever went down on its own, but he’s too lethargic for my liking.

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