Brock Rocks

December 20, 2010

spinal tap, big decisions, exciting news

Filed under: Uncategorized — Vanessa @ 9:49 pm

Brock had a spinal tap last Wednesday and he did FANTASTIC!  I think we finally figured out what works for him so that he’ll actually sedate.  Benadryl, Versed, Ketamine, and a doctor that works fast!

The rest of this is long and kind of detailed, but important information and big prayer requests.

While we were there Brock’s oncologist talked to us about considering participation in a clinical trial.  Brock’s current treatment plan (which is recommended by a nationwide organization) calls for iv chemo and 5 days of steroids every 4 weeks, and spinal taps with intrathecal chemo (chemo into his spinal fluid) every 12 weeks.  The clinical trial wants to see if it’s effective to only do iv chemo and steroids every 12 weeks instead of 4.  (Both protocols would have him getting oral chemo every night at home).

The reason she thought we might be interested is because for the last 2-3 months Brock’s been getting fevers for a week or more after we finish the steroids.  Remember fever means ER visit, blood cultures, labwork, etc.  No one knows exactly why he’s getting the fevers.  It could be because the iv chemo and steroids are surpressing his immune system to a point where the fungal infection is flaring up.

So.  We don’t know what to do.  It would be really nice to only do steroids every 12 weeks.  And if that keeps the fungal infection at bay and keeps Brock out of the hospital, then fantastic.  But.  BUT!  What if waiting every 12 weeks instead of 4 weeks between rounds makes him relapse further down the line?  I really can’t even imagine.  If that happened, a stem cell transplant would be his only option for a cure and honestly, I don’t think his body (and his kidneys in particular) are in good enough health to live through a transplant.  Not to mention the fact that Jaycie isn’t a match for a donor.

So please pray for Jay and I.  That God would give us wisdom about which option to chose.

Lastly, I have exciting news!  Brock-ly is going to school in January!!!  He’ll be going to Mother’s Day Out at our church 1 day a week.  We’re all so excited for him.  Jaycie’s so excited that she bought him a nap mat for Christmas.  🙂  He’ll be in the younger-one year old room because that’s about where he is developmentally.  We’re hoping that this will give him even more opportunity to get caught up on all the development he’s missed out on during the last year.  Please pray that God would protect his immune system and keep him safe from illness while he’s at school.  Pray also that he’ll have an easy time adjusting and that God can use this to help Brock learn to eat, walk, etc.

Thank you for continuing to pray with us!  We’re praying you all have a wonderful Christmas!

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14 Comments »

  1. What absolutely precious pictures! Sending you much love, hugs and prayers.

    “An infinite God can give all of Himself to each of His children, He does not distribute Himself that each may have a part, but to each one He gives all of Himself as fully as if there were no others” – A. W. Tozer

    ♥ ♥ ♥ ♥ *GOD LOVES YOU* ♥ ♥ ♥ ♥

    In His Love,

    Caterina
    C.O.L.E.’S FOUNDATION MD Rep
    caterina@colesfoundation.org
    C.O.L.E. (Caring Openly, Loving Eternally) Prayer Team
    http://www.colesfoundation.com
    24/7 Prayer Line 888-365-COLE (2653)
    http://www.kidsunitetofight.com

    “There are many Americans who are clever and fearless, but the trouble is many are small children fighting an ugly disease.”

    Comment by Caterina Grove — December 20, 2010 @ 9:53 pm

  2. Love the pictures!!!
    We will put it out on the prayer line, try not to rush into either choice, take the time to talk to God and let him lead you.
    You have a strong faith and we know he will guide your choice.
    God Bless

    Comment by Barbara Whipple — December 20, 2010 @ 10:00 pm

  3. I will be praying that God will give you and Jay wisdom on what decision is best for Brock and complete peace with whatever decision you make. So excited about school for him! He will have so much fun!

    Comment by Rebecca — December 20, 2010 @ 10:03 pm

  4. I remember when Ashers oncologist gave us an overview what we might be facing and what decisions would have to be made. It’s hard. She said…we will make a decision together and go that route and don’t look back with regrets. The decisions that are made will be because we think that is the best decision for Asher. I pray for you that you will decide what the next step is and be at peace with it, and don’t let anyone tell you it’s wrong because in your heart you do whatever you think is best for Brock.

    Comment by Britta Kiesel — December 20, 2010 @ 10:05 pm

  5. Love the pictures!! Lots of prayers for the Brock family, that God will lift the weight of these questions from you and hold you in his hands so that you may enjoy everyday without this stress and that he will give you the answer you need! Our God is an awesome God and so is the Hart family!!

    Comment by Rachel Kolb — December 20, 2010 @ 10:09 pm

  6. So happy to hear all the good news! We cant wait to see what an awesome little school boy Brock will make : ) We will be praying for guidance for you both on all big decisions!!!! Love and Blessings- Ericka, Trent, Brinley, Reece and Lola : )

    Comment by Ericka Williams — December 20, 2010 @ 10:42 pm

  7. HOW exciting that Brock will be going to school!!!! HOW FUN!!

    I pray that God will give you direction in the best course of treatment for Brock!!!

    Have a blessed CHRISTmas!!!!

    Check it out…we have added a new link (It is right above the prayer requests) on the site for posting your own prayer request (or one for someone else). It is great if you need us to pray and don’t have time to update your site.

    ♥♥ Love ya!! ♥♥
    C.O.L.E.’s Foundation
    (Caring Openly, Loving Eternally)
    http://www.colesfoundation.com
    Check it out it…a new feature for the Cole’s Foundation: http://www.colespages.org

    Comment by Sandy Daron — December 20, 2010 @ 11:03 pm

  8. Brock looks like such a big kid in that first picture! I have said from Day 1 that God knew what he was doing when he chose you and Jay to be Brock’s parents and I believe it now more than ever. He knows you will trust Him to make the right decision for B just as you have this entire time. I know that you two feel confident in your decisions and I’ve heard it in both of your voices. Don’t let these be any different! So excited for Brock to get to go to school. What an exciting time! I will be praying along with you (as always). Love you!

    Comment by Missy — December 20, 2010 @ 11:08 pm

  9. Dear Vanessa and family, thanks for the Christmas photo card of all of you. We loved it! Of course we will be praying for Brocks current and future needs. I was so excited earlier to see him pulling up to a table! I told Jim,”he’s going to walk!” I pray for other improvements to come, especially for him to be able to eat. God bless you all. Love, Aunt Connie
    Keep the faith!

    Comment by Connie Huffmon — December 21, 2010 @ 12:11 am

  10. Praying for wisdom for you, as well as no more hospital or clinic visits at least until after Christmas. Also praying that the new year brings complete healing for your precious son. Merry Christmas!

    Comment by Valerie Olmstead — December 21, 2010 @ 3:26 am

  11. I just love the pictures and feel like I’m seeing a miracle. I pray that God would guide you in the decisions that you need to make for Brock and continue to pray daily for Brock’s little body to continue to fight and heal. Seems absolutely amazing that he’s going to go to school. That’s so wonderful.

    Comment by Susan — December 21, 2010 @ 7:06 am

  12. Wow, lots of stuff here. I will be praying for wisdom for you and Jay. Thankfully, God promises in James Chapter 1 to give us wisdom if we ask for it. I will also pray for good health and a good school experience for everyone

    Comment by Melanie — December 21, 2010 @ 7:21 am

  13. You have made all the best choices for Brock and with continued guidance from above every option you select will be the right one
    for him.

    Comment by Ed — December 21, 2010 @ 7:25 am

  14. I will be praying for wisdom for you and Jay as you make these crucial decisions regarding Brock. It is so amazing how far he has come already, and God has just started with him! So excited to know that Brock is going to school; He will have so much fun, I am sure!

    Comment by Shannon Edwards — December 21, 2010 @ 12:54 pm


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