Brock Rocks

November 27, 2010

fever, but…

Filed under: Uncategorized — Vanessa @ 11:44 pm

brock had another fever tonight but the on call dr said we could stay home since he looks/acts the same and since he’s probably not neutropenic.

praying the fevers are nothing and that he doesn’t have any more of them.

Advertisements

thankful

Filed under: Uncategorized — Vanessa @ 10:14 am

brock had another fever fri morning. cbc was still ok so we were sent home. thankful that we didn’t have to go in on thursday and praying for no more fevers.

November 24, 2010

fever!

Filed under: Uncategorized — Vanessa @ 4:32 pm

Brock woke up with a fever this morning so we spent all day in the ER.  His cbc looked fine so they did blood cultures and gave him a dose of iv antibiotics and let us go home.  If he has another fever after 24 hours we have to go back.

Thankful that we got to come home and praying for no more fevers this weekend!

November 21, 2010

“Amen!”

Filed under: Uncategorized — Vanessa @ 3:07 pm

Yay!  Brock got to go to church today for the first time in…I honestly can’t remember how long.  And!  He did fantastic!  Which is really surprising, given the fact that it’s steroid week.

B had a clinic appointment last Wednesday. 
– c diff is gone!  praise the Lord!
– he got iv chemo through his port
– his blood pressure has been kind of high the last several months so they’re referring him to a nephrologist we saw last january when he was inpatient.
– they finally decided to let us give him an appetite stimulant.  he literally eats nothing so hopefully this will help.  we start that on tuesday (after we finish steroids)
– he goes back in 2 weeks for lab work and then 2 more weeks for chemo and a spinal tap

Brock is saying SO MANY new words lately!  I love hearing him talk.  He’ll try to mimic almost anything you say and he consistently says mama, dada, sissy, ball, up, down, bye bye, papa, remi (our dog), thank you, hot, cold, baby, love you, elmo, go, hold, all done, uh oh, car, bird, phone, and amen (he’s obsessed with praying lately).  No one can ever eat around Brock without him clasping his hands and trying to tell them to pray first.  I’m sure it doesn’t sound like a lot of words for a 2 year old, but just a few months ago he wasn’t saying anything!  Next step: walking.  I hope, because MAN he’s getting heavy to carry around.

Praises:
– we’ve been home for so long
– he’s had a few colds but hasn’t had a fever over 101 and had to go to the hospital
– that he’s making so much progress with speech

Prayer Requests:
– that everything’s fine with his kidneys/blood pressure
– that he will EAT
– that he’ll start walking

November 18, 2010

Diagnosi-versary, Take 2

Filed under: Uncategorized — Vanessa @ 1:53 pm

One year ago, today, I was sitting in a PICU room as a doctor told us that they’d identified the type of mold as aspergillus.  I will never, in all my life, forget the words she said to me.  “I think it’s possible that Brock might live, because you and I serve a big God who can do miracles….but I don’t think it’s probable.”

 

I remember holding hands with Jay later that evening and physically hurting from the emotional pain we were carrying.  We talked about how neither one of us could picture, in our mind’s eye, a 5 year old Brock fishing with his daddy.  But we could both see, clear as day, our pastor standing at the front of the church before a casket.

This day, last year, changed our lives more than the day Brock was diagonsed with cancer.  Almost everything he’s been through since then, has been because of the fungal infection, not because of the leukemia.  Leukemia has a cure rate of about 90%.  Invasive aspergillosis – about 5%.  The fact that Brock is asleep in his bed down the hall from me is. a. miracle.

Even today, my chest aches as I remember those dark days from last November.  But I’m so thankful.  For the doctor and the nurse who were there that day.  Because they both loved God and cried with us and prayed with us.  I’m thankful for the many, many lives that have been touched by Brock’s story.  I’m thankful that God has taught us how to praise him in the storm.  Taught us how to trust in his power and might, and not on our own understanding.  Because according to our own understanding, Brock wouldn’t be here.  I’m thankful that he allowed us to be a part of the miracle he created. 

Even more than that, I’m thankful that He gives ALL of us a chance to participate in the miracle of having our lives renewed and redeemed through Christ.  I pray that if you’ve gained anything from following our story, it’s knowledge and acceptance of the fact that Christ loves you and died for you and that there is redemption in Him.

November 17, 2010

Celebration

Filed under: Uncategorized — Vanessa @ 9:51 pm

Yay!!!!  We’ve been home for 1 month!!  I’m pretty sure this is the longest stretch we’ve been at home in the last 13.5 months.  Praise the Lord!

November 13, 2010

Quick Update

Filed under: Uncategorized — Vanessa @ 7:18 pm

All the bloodwork from Wednesday (cbc and cmp) came back good.  Praise the Lord!  It’s such a miracle that we’ve been able to stay home during this whole c diff thing!

Diapers are still yucky.  We finish the Flagyl on Monday.  Hopefully they’ll be better by the middle of next week.

Exciting day for us, coming up soon.  I’m not even telling you because I don’t want to jinx it.  😉

Thank you for continuing to pray for us.  Love you all!

November 9, 2010

C Diff, Still

Filed under: Uncategorized — Vanessa @ 4:49 pm

I talked to clinic yesterday and they said the yucky diapers can last up to several days AFTER we finish the flagyl (which won’t be for another week.)

Awesome.

Home health is coming to do a CBC and chemestries tomorrow to make sure he isn’t getting dehydrated. Pray for good blood work!

November 6, 2010

C Diff, Yuck!

Filed under: Uncategorized — Vanessa @ 9:33 pm

For some reason when I hear the word “C Diff” I think of Calculus.  Differential equations, maybe?  I don’t know.  I’m weird.

Brock has c diff.  It’s a bacteria that causes HORRIBLE diarrhea and can lead to other intestinal disease.  I’d always been told by nurses that if Brock had c diff, we’d know it because the smell is so horrible.  They weren’t kidding.

It was diagnosed on Friday so he’s had 1 full day of Flagyl but the symptoms aren’t better yet.  Praying his yucky diapers get better soon!  Pray also, that he doesn’t become dehydrated.

The Radiothon went really well!  Thanks to everyone who listened, and double thanks to everyone who called in to donate to Children’s Miracle Network.

November 5, 2010

KXY Love’s Kids Radiothon

Filed under: Uncategorized — Vanessa @ 8:46 am

You can listen to www.kxy.com (96.1FM if you’re local) around 1pm CST today to hear Jay or I tell Brock’s story for the KXY Love’s Kids Radiothon.  All of the money raised stays in Oklahoma and pays for things like life-saving research.  Please listen and consider donating to the Children’s Miracle Network!

Older Posts »

Create a free website or blog at WordPress.com.