Brock Rocks

October 2, 2010

Change of Plans

Filed under: Uncategorized — Vanessa @ 8:43 pm

Brock was discharged from the hospital last Tuesday, a few hours after I wrote that last post.  We’re continuing iv antibiotics at home for 14 days to treat the blood infection that he had.

When we left the hospital the plan was to return this Monday for the surgery.  However, I got a call a few days ago from our surgeon’s nurse.  She said that he wanted to cancel the surgery on Monday and have us come see him in clinic on Wednesday.  I have no idea why he changed the plans or what he might say but I guess we’ll find out soon enough.

Jay and I have been talking with Brock’s doctors and PAs about our concern regarding the MANY line infections he’s had over the last several months. 

[I just re-read this and felt like I should clarify.  When I say “line” I’m referring to his infusaport – the device that’s under his skin in hist chest and is used to administer iv drugs, including the iv antifungal we give at home every night.  When it gets infected it can (and does) easily spread to his blood stream.]

 Jay and I feel like we are very diligent about taking care of his line and these infections are extremely frustrating because it feels like they should be preventable.  That’s one of the reasons we’ve been wanting the ID doctor to give the ok for stopping the iv antifungal: because then Brock’s line wouldn’t be accessed 24/7 and it would reduce the risk of infection.  Some of the doctor’s/PAs are starting to think that Brock’s spleen isn’t functioning at 100% (and possibly not functioning at all) and that could be what is making him so prone to infection.  We know that his spleen was significantly affected by the fungal infection – 2nd only to his lung.  It’s possible that it was so damaged by the infection that it’s not working anymore.  The doctors are discussing whether or not they should start Brock on an antibiotic prophylaxis regimen.  We meet with our main oncologist this Wednesday (the same day we meet with the surgeon) so please pray for wisdom for them in determining what treatment (if any) we should pursue.

Thank you so much for continuing to pray with us.  We’re coming up on the 1 year diagnos-iversary and it’s so comforting to know that you are all still here walking this road with us.

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13 Comments »

  1. Praying for some good news!

    Comment by Britta Kiesel — October 2, 2010 @ 9:56 pm

  2. We’re proud to walk this road with you. We pray Brock gets better and that they figure out what causes all these infections. You are an inspiration to all of us.
    Much love,
    Vicky and Sam Bass

    Comment by vicky bass — October 2, 2010 @ 11:23 pm

  3. Praying for complete and total restoration for Brock and some good news for you!

    Comment by Susan — October 3, 2010 @ 7:02 am

  4. WE’RE STILL HERE AND PRAYING!!

    Comment by ESMERALDA — October 3, 2010 @ 11:44 am

  5. Diagnosiverseray. You should totally patent that word. 🙂

    Comment by Missy — October 3, 2010 @ 1:21 pm

    • i totally stole it from someone else. 🙂

      Comment by Vanessa — October 3, 2010 @ 2:20 pm

  6. Sill praying

    Comment by Jessica Davis — October 3, 2010 @ 1:49 pm

  7. Have they thought about a broviac/hickman catheter? One that does not need accessing 24/7, and an access that requires NO needles for Brock? It is a catheter that is hanging out the chest, but is secured by a “cuff” in the sub-q tissue. I have seen them work quite well with kiddos, and helping to stop infections. Love to all!!!

    Comment by Tanni — October 3, 2010 @ 5:54 pm

  8. Caring and praying for the little man is the easy part. You folks are
    wonderful parents and most loving in all you do for your son and sweet
    daughter. It is inspiring for all who daily “watch” all you do.

    Comment by Ed Merrell — October 4, 2010 @ 9:13 am

  9. I’m so thankful that you and Jay carefully evaluate each step taken. Praying that each step will get easier as God restores Brock’s health completely.

    Comment by Linda Heikkila — October 4, 2010 @ 9:40 am

  10. Praying for wisdom for all and for sweet Brock!

    Comment by Susie — October 4, 2010 @ 10:02 pm

  11. While we hate to hear of more surgeries, infections, hospitilizations for your little boy, yet we are ecstatic Brock’s 2nd birthday is fast approaching. What a year it has been. We Goodners are still keeping up with your family. Thanks so much for maintaining your blog with information and photos. I know it takes precious time away from your family to accomplish it, however we check it often if not daily, and are constantly including your family in our prayers. Good luck and many prayers!

    Comment by ashlye — October 5, 2010 @ 6:00 am

    • thank you so much ashlye! it’s nice to know that someone appreciates the time it takes (b/c you’re right – it DOES take time)

      Comment by Vanessa — October 5, 2010 @ 2:24 pm


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