Brock Rocks

September 18, 2010

Updates and a Challenge

Filed under: Uncategorized — Vanessa @ 9:50 pm

It’s been so long that I posed that I had to go back and see what I said in the lsat post.  I’m sorry!  And still roughly 100 of you each day come to this blog to check on our baby.  Thank you so much.  Here’s a picture to make up for our absence.

So, the surgery.  It went infinitely better than I thought it would – and than the surgeon thought it would.  He had a room reserved for us in the PICU because he assumed Brock would lose a lot of blood during the surgery.  I had told friends to expect us to be in the hospital for at least a week and we were home 3 days later!  God is so good!

We did get to talk to the infectious disease doctor while we were in the hospital.  She said she’s not completely opposed to stopping the iv antifungal (he still takes an oral antifungal) but she wants to do another CT scan before she decides.  She wants to see if there are any other infected areas that the surgeon needs to remove.  They’re going to be looking at his spleen, in particular.  We have an appointment with the ID doctor on the 27th to talk about when to do the CT scan.  Pray for wisdom for her and the surgeon.  Pray that God would protect Brock from the harmful effects of the CT scan (he’s had over 20 scans done now).

Brock had a spinal tap with intrathecal chemo last Wednesday.  You know he’s had problems sedating for these in the past.  He did ok this time – not the best sedation/spinal tap we’ve ever had, but not the worst by far.  He also got iv chemo through his port.

He’s been doing really well with his new g-tube.  We’ve been able to transition to bolus feeds during the day and we still do continuous feeds at night.  Please pray that Brock would start to feel hungry and eat again soon.

Brock has been making huge developmental progress lately!  We’re so pleased with how far he’s come in the last few months.  He’s started cruising around furniture!  He’s saying and signing more and more words every day.  We have a wonderful speech therapist that is going to start visiting with him twice a month.  She’ll be working with him to help him start eating again also.

You all have been so generous to us over the past 11 months.  Every meal, phone call, card, and donation has been greatly appreciated!  I wanted to tell you about a way that you can do something to help that’s more long lasting.  Our family is going to be participating in the Leukemia and Lymphoma Society’s annual fundraiser the Light The Night Walk.  The LLS raises money for life saving research to cure all types of blood cancers as well as providing patients and their families with information and support.  Many of you have already given in support of us and we are so thankful!  Every donation, no matter how small, really does help.  You can view our team’s page and make a donation if you like by visiting http://pages.lightthenight.org/ntxok/OKCityL10/BrockRocks

A few days ago I mentioned, rather flipantly, to my husband that I was toying around with the idea of shaving my head if we could get $5,000 donated through our team.  I thought it would be an interesting idea to get people motivated to give.  Well, my husband told his family…his family full of people that like to (lovingly) give me a hard time.  My brother in law told me today that he thought I was bluffing.  He didn’t think I really meant it.  I’m a little bit like Marty McFly when it comes to things like that. 

So to prove him wrong (and to prove that it doesn’t have to be something as huge as $5,000), here it is:  If we can get $3,690 donated to the LLS through our team then I will shave my head.

Why $3,690?  The day of the walk will be 369 days since Brock was diagnosed with leukemia.  Ten dollars for every day.

It’s just hair, y’all.  I have the privilege of good health and the opporunity to let it grow back over the next several months.  So many kids that I know aren’t guaranteed that same time or opportunity.  Please consider giving.

We love you all!  Thank you so much for continuing to love and support us!

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15 Comments »

  1. Wow he is looking so good. We’ve been thinking about you all and praying everyday. I’m kind of wondering about the speech therapist. Ashers doc thinks that Asher is doing fine speech wise. He isn’t talking at all, but is constantly jabbering. Can you tell me some details about Brocks speech development? What he does/did or didn’t do? We still haven’t been able to get Asher into Soonerstart, they are not returning my daughters phone calls and honestly i am starting to get furious about it. So glad to see Brock doing so well, what a miracle he is.

    Comment by Britta Kiesel — September 18, 2010 @ 10:01 pm

    • i’m shocked you’re having problems with sooner start! they’ve been wonderful to us and i’ve never had problems getting in touch with them. let me know if there’s anything i can do.

      when we started with them a few months ago he didn’t say anything at all. now he says mama, hat, go, down, done, and he can sign all of those plus sign (but not say) bird, dog, and water.

      Comment by Vanessa — September 18, 2010 @ 10:07 pm

      • replied..but my comment is gone. Asher jabbers constantly, maybe why they are not too worried about his speech yet. I think i might email SoonerStart and ask them to contact my daughter. We’ll keep praying for Brock, maybe one of these days we actually get to meet you all : )

        Comment by Britta Kiesel — September 19, 2010 @ 12:31 pm

  2. He looks healthier. I know he’s sick, but in this picture, he looks great. I’ll contribute to that haircut. Let me talk to Sam and we’ll get back to you!
    Love,
    Vicky and Sam

    Comment by vicky bass — September 18, 2010 @ 10:07 pm

  3. Vanessa you are amazing, God is smiling down upon you and your family, you truely have a gift. Your strong Faith is an example to us all and Brocks courage and strength puts me in awe. Your family is in my prayers always, may he lift you up and continue to shower you with beautiful blessings! Xoxo

    Comment by Rachel Kolb — September 19, 2010 @ 12:16 am

  4. Oh, yes we were needing a picture! He looks so good–and so beautiful!!!! Please scoop him up for me and hug and kiss him! Praise God he’s doing so well!!!!!

    Comment by Cindi Cartwright — September 19, 2010 @ 6:42 am

  5. So so proud of where you’ve been and where you are going… I predict you will far exceed your LLS goal and score that cute Friday Playdate haircut you’ve been covering. Can’t wait to see it!

    Comment by Jill — September 19, 2010 @ 6:49 am

  6. Wow. U are amazing nessa jo. I plan to donate and am going to try to be there the night of the walk, emma in tow. Love u guys!

    Comment by Liana — September 19, 2010 @ 8:41 am

  7. What an absolutely awesome picture of a super awesome little guy!!! May God continue to bless you from head to toe.

    “An infinite God can give all of Himself to each of His children, He does not distribute Himself that each may have a part, but to each one He gives all of Himself as fully as if there were no others” – A. W. Tozer

    ♥ ♥ ♥ ♥ *GOD LOVES YOU* ♥ ♥ ♥ ♥

    In His Love,

    Caterina
    C.O.L.E.’S FOUNDATION MD Rep
    caterina@colesfoundation.org
    C.O.L.E. (Caring Openly, Loving Eternally) Prayer Team
    http://www.colesfoundation.com
    24/7 Prayer Line 888-365-COLE (2653)
    http://www.kidsunitetofight.com

    “There are many Americans who are clever and fearless, but the trouble is many are small children fighting an ugly disease.”

    Comment by Caterina Grove — September 19, 2010 @ 8:50 am

  8. What a cutie! Thank you for sharing this beautiful picture with all of us. Praise God things have been going much better than expected. You all continue to be in my prayers.

    Comment by Valerie Olmstead — September 19, 2010 @ 12:12 pm

  9. Love the picture of Brock, he has the most beautiful eyes, so wise! It was wonderful for me to see him in August. All or you actually!! I really needed a visit with family. I’ll be watching for posts now I’m home and, as always, keeping you all in my prayers. Love, Aunt Connie

    Comment by Connie Huffmon — September 19, 2010 @ 7:43 pm

  10. Brock looks so cute. Can’t help but think that each of his scars represent God’s faithfulness & answered prayers. Such a blessing to be able to give…continuous prayers & much love sent your way.

    Comment by Susan Veatch — September 19, 2010 @ 8:24 pm

  11. So cute! I think he looks like Jaycie in this pic. Thanks for the update! Still praying 🙂

    Comment by Susie — September 19, 2010 @ 10:22 pm

  12. How great it is to hear how well Brock is doing. You all remain in my prayers. I’m looking forward to seeing your shaved head!! Money to follow on payday. Sweet Lord, please let this family rest comfortably in your care as you continue to heal Brock completely.

    Linda

    Comment by Linda Heikkila — September 20, 2010 @ 8:17 am

  13. Great news I know that you guys have to be so happy that Brock is doing so good, and by the way what a cute picture of Brock he looks so happy and if it was not for the scares and port you would not be able to tell that he was even sick… Praying that God continues to answer your specific prayers for Brock’s treatment and complete recovery…

    Comment by linda — September 20, 2010 @ 10:45 am


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