Brock Rocks

July 23, 2010

July 23, 2010

Filed under: Uncategorized — Vanessa @ 11:40 pm

I apologize for being so “quiet” lately.  Last fall and winter when we were in the hospital and Brock was so sick, it was easy to update.  He slept or sat in my lap all day and I easily had 30 minutes a day to sit down and right a post.  Now?  I barely have 30 minutes a day to eat.  Ok, that’s not true.  I love to eat and can always make plenty of time for that.  But, blogging?  That’s harder.

The reason we were back in the hospital over last weekend is because the skin around Brock’s g/j tube got infected as soon as we stopped the antibiotic.  They started that same antibiotic again (vancomycin) and we’re finishing it at home.  So we’ll do 2 weeks of iv antibiotics and then switch to an oral antibiotic for 2 weeks and that should get us up to the date of the surgery (Aug 17th).  We’re doing this because if that skin gets infected again (or doesn’t clear up) before the surgery, then they won’t be able to do it.  And the timing of the surgery is important, because we need it spaced between his doses of steroid.

Speaking of which, we started steroids again today.  In the past, they’ve made him crazy.  Not just “I’m cranky and irritated because I’m on steroids” crazy, but full-out, screaming for hours a day, kind of crazy.  This month the doctors also gave us a prescription for phenagren.  It’s’ supposed to help with the steroid-crazy.  I sure hope so.

He also had a spinal tap today.  He did so good!  And it helps a lot that we had a really good person there to hold him down.

Tomorrow night we’re taking Brock to the Children’s Miracle Network ‘Dancing for a Miracle’ fundraiser.  Since Brock is a CMN Miracle Child, they’ve asked us to come and share a little bit of his story with everyone.  You all know I’m a numbers person so I’ve spent several hours this week reading through ALL of the blog posts and counting up things….10 CT scans, 60+ xrays, 4 chest tubes, 7 surgeries, 100+ transfusions, 11 weeks on oxygen, 19 consecutive weeks inpatient, 193 days total inpatient…98 days total at home.  This Sunday will be Brock’s 100th day at home.  It seems like just yesterday, and also 10 years ago, that we were celebrating his 100th day in the hospital.

Thank you so much for keeping up with us these past 291 days.  Your love, support, and prayers mean so much to us.

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10 Comments »

  1. Wow! The number recap is astonishing!!
    1 amazing little boy and 2 incredible parents!
    I hope this round of steriods goes better.

    Comment by felicia — July 24, 2010 @ 12:24 am

  2. I think that last paragraph sums up his journey perfectly except for you left out one amazing little boy and ONE BIG GOD!

    Comment by Missy — July 24, 2010 @ 9:40 am

  3. Add to your numbers 291 days that Chris and I have prayed for Brock and your family. Please know that every entry to your blog is meaningful to us. It helps us celebrate what needs celebrated and hurt when you hurt. I love the pics. Seeing your family at church the other day made my heart sing. You are a living testimony to the greatness of our awesome God.

    Comment by debby — July 24, 2010 @ 10:16 am

  4. Tearing up is so common when I read your updates and keep up to speed on your miraculous journey. What an amazing little fighter you have, amazing family you are and an amazing story of faith you inspire us with all the time. May God continue to bless you always.

    Comment by adrian — July 24, 2010 @ 11:02 am

  5. An annual project Jay, Jerry and I have worked on together came up this week and it culminates in November. I thought back to last year when we were working on it and I remember they had to rush to the hospital several times. I can’t believe how far he has come in this time, how we didn’t know if he’d make it to Christmas, then the New Year, then Easter and so on. He’s just hung in there. Maybe it’s a blessing he couldn’t understand the doctors because nobody told him that his chances were slim. He is an amazing baby with an indomitable spirit. God gave him that spirit because of this family’s devotion to God. You are in my thoughts and prayers daily.
    Much love,
    Vicky and Sam Bass

    Comment by vicky bass — July 24, 2010 @ 4:06 pm

  6. Dear Vanessa, thank you for sharing the numerical update. It’s hard to imagine what all those #s entail. I pray that our God continues to bless you and your family. Love, Aunt Connie

    Comment by Connie Huffmon — July 24, 2010 @ 8:57 pm

  7. you and your numbers…never fails to make me laugh! brock is a living testimony that God still performs miracles. i look at your family and praise God, give glory to Him for all He has done.

    good luck on your speech, no doubt you will do great! also, i’m with you…always have time to eat. i met a girl the other day that laughed and said she often forgets to eat and doesn’t remember until she goes to bed at night. um, yeah, never been an issue for myself! what a weirdo.

    Comment by marcy — July 24, 2010 @ 9:32 pm

  8. Hope everything stays under control before, during, and after the upcoming surgery. You are in our hearts and prayers always!

    Comment by ashlye — July 25, 2010 @ 4:50 pm

  9. Words cannot express how much Brock and your family means to me. I know God is working in all your lives, but sometimes it seems so slow, yet in God’s sight it is just the blink of his eye. God will see you through all of this, I have no doubt. You, your family, and Brock will grow stronger and will perserve every obstacle. What grows short in this equation is our understanding, patience, and faith. I pray that your faith, patience, and understanding about God’s works is neverending. Your family has touched so many lives, and maybe some nonbelievers who are watching this miracle and trying to understand God will learn what He is all about. God has given you a heavy burden, but you are not alone. We are there with you and rejoice every day of Brock’s life. Love you, Linda

    Comment by Linda Heikkila — July 26, 2010 @ 7:49 am


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