Brock Rocks

June 9, 2010

Home Again, Home Again

Filed under: Uncategorized — Vanessa @ 10:17 pm

We made it home Tuesday evening.  Praise the Lord!  Words cannot do justice to how nice it is to be home for 24 hours.  I’m praying we won’t have to go back for a long time!

The infectious disease doctor gave us the ok to switch one of Brock’s antifungals (vfend) from iv to oral (or more specifically, through his j-tube).  Yay!  Like I said earlier, that eliminates 4 hours a day that he has to be hooked up to an iv.  We have a whole weeks worth of that iv med at home so instead of throwing that $500 down the drain we’ll finish using it this week and switch to the oral med next week.

The other antifungal that he gets (ambisome) isn’t available in an oral form, so we’re praying that sometime in the near future he’ll be well enough to stop that one all together.  But who knows.  It could be years from now before that happens.  He’s been on both of those antifungals for about 7 months, and has therefore had his port accessed every day.  If we could stop this last iv drug his port wouldn’t have to be accessed and he could do “real kid” stuff like go swimming.  Or hey, take a bath everyday.

Jaycie is beside herself with excitement about Brock being home.  We went out to eat last night and she got up from her chair and went around the table to give him a hug no less than 7 times in the half hour we were there.  Some ladies from Sooner Start came out today to evaluate Brock and when one of them said something to Brock about wanting to take him home with her Jaycie promptly spoke up and let her know that no such thing would be going on.

The evaluation went well, by the way.  They’ll come out next week to set up plan of care, set goals, etc.

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10 Comments »

  1. Awesome news! 🙂 I loooove that Jaycie!

    Comment by Missy — June 9, 2010 @ 10:22 pm

  2. I am so happy you’re home and thrilled for Jj! I hope Sooner start goes better than you ever expected, that he can get off the last IV med and do whatever he wants!!!

    Craig and the kids wanted me to pass on that they are happy Brock is doing so well!

    Comment by Tommi Campbell — June 9, 2010 @ 11:32 pm

  3. AMEN, Jaycie!! I’m with you!! So glad you are home again and Brock’s feeling better.

    Comment by Cindi Cartwright — June 10, 2010 @ 5:40 am

  4. Hooray! So happy for you! We have a new baby at our house, maybe I’ll bring her by to see Jaycie at the office. She’s a schitzu without papers…except the ones on the floor!
    Love,
    Vicky and Sam Bass

    Comment by vicky bass — June 10, 2010 @ 6:39 am

  5. Thank you Father for bringing this child home!!!! Have lots of fun and know that you are in our prayers daily. Father God please continue to work miracles in this family’s life.

    Comment by Linda Heikkila — June 10, 2010 @ 7:43 am

  6. Great news, nothing like sleeping in your own bed, going to your kitchen when you want something or just sitting in you favorite chair… Praying that all goes well during the next several days and you guys get to spend some quality time together as a family under one roof…

    Comment by linda — June 10, 2010 @ 2:27 pm

  7. We have not been able to get SoonerStart to come out and evaluate Asher yet. It’s been months. They were supposed to come but the day they wanted to come out was the day he had an EEG. Just haven’t been very lucky with the whole physical therapy thing, we are all hoping it will get resolved soon. Glad that Brock doesn’t seem to have that problem. Thank God! So happy to hear that you are all back home, we keep praying for that little boy.

    Comment by Britta — June 10, 2010 @ 4:21 pm

  8. Bath’s are overrated. 🙂 Jaycie is too precious. I can see her little hand on the hip, leg bent just so, saying, I don’t think so lady! Hugs! Great news on the one med. We’ll pray for the other med. Love you guys!

    Comment by Liv Wilson — June 10, 2010 @ 9:56 pm

  9. Praise the Lord for such a great report!
    Lou Ann Amstutz
    Cole’s Foundation Prayer Partner

    Comment by Lou Ann Amstutz — June 11, 2010 @ 7:38 pm

  10. Have not heard anything for the last few days hope all is well, praying that you guys have a great and restful weekend…

    Comment by linda — June 18, 2010 @ 1:47 pm


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