Brock Rocks

June 7, 2010

Delayed Intensification: Done!

Filed under: Uncategorized — Vanessa @ 2:20 pm

Yesterday was Brock’s last day of Delayed Intensification (the last really hard round of chemo).  We’re so thankful the Lord brought him through it.  Yesterday was also 8 months from the first day that we brought Brock into the hospital.

See, I started off with a nice paragraph there and now my brain can’t think of what to do next.  Back to bullet-style.

– Brock’s blood counts all look great.  Hemaglobin, platelets and AGC are all within the normal range.

– We’re stopping one of the antibiotics today (vanc) and stopping the other one tomorrow (meropenem).

– After his last dose of meropenem tomorrow, we get to go home!!!!  Praise the Lord!

– The hem/onc doctors are talking to the infectious disease doctors about if it would be ok to switch one of Brock’s antifungals from iv to oral (or through his j-tube).  This would eliminate 4 hours every day that Brock has to be hooked up to an iv. 

– The hem/onc doctors are also talking to our surgeon (who we love!) about if it might be possible to replace Brock’s g-j tube with a g-tube and try again to do a fundoplication.  With the g-j tube the food goes to his intestines and has to be continuous.  With a g-tube the food would go to his stomach and he could be fed intermittently.  Theoretically, it would be easier to try to get him back to eating by mouth with a g-tube (b/c he would go for periods of time without any food and would actually be able to feel hungry – something he probably doesn’t feel with the continuous feeds).  BUT, his reflux is so bad that he can’t have a g-tube without having a fundoplication done.  The last time they tried to do one (in January), the surgeon wasn’t able to do it because everything in his abdomen was “stuck together.” 

Have I completely lost you yet????

The point is, we want the fundoplication and the g-tube, but aren’t sure if it’s possible or if the surgeon is willing to try to do it again.  He should be coming by to talk to me some time today.

When Brock starts the last phase of chemo (maintenance) depends on if and when they want to do the fundo/g-tube surgery.

– Brock has been SO happy and playful the last several days.  We’re praying that he stays that way once we get home!  I’m sure he feels more comfortable and ‘at home’ up here on the hem/onc floor than he does in his own house.  I haven’t figured it up, but I would guess that in the last 8 months, he’s spent about 6.5-7 of them in the hospital.  Of course he feels more at home here!

– Thank you for continuing to pray with us!

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4 Comments »

  1. I would like to bring you groceries or dinner one day. When you get home, please give me a call 405-370-6169. I owe your husband for helping me nominate Karen Black for design star!
    Thanks,
    Jennifer

    Comment by Jennifer Miller — June 7, 2010 @ 2:24 pm

  2. I know this has been rough, but also think of the blessings you’ve had and how much you’ve grown these past few months. You have done well. He is so beautiful. We’ll keep praying on this end.
    With love,
    Vicky and Sam Bass

    Comment by vicky bass — June 7, 2010 @ 2:37 pm

  3. Followed the link to fundoplication – I actually followed it but …… science is wonderful but I now know why I never did very well in it. So glad that Brock has been so happy the last few days. I pray this is the start to a wonderful recovery for him. Gotta say, V, that you and Jay must have started becoming medical specialists with all that you have learned since October. I’m so pleased that you have really taken the time to actually study and understand what Brock has been going through. Although this knowledge will not relieve Brock’s pain, you have learned what to expect and how to handle it. That little guy is so blessed to have such wonderful parents and the fact that his parents share so much with us.

    I pray daily for your entire family and God’s wisdom for Brock’s physicians and nurses. Bless you all.

    Comment by Linda Heikkila — June 7, 2010 @ 2:41 pm

  4. What wonderful news that Brock has completed the worst of chemo and gets to be home w/his family! Praise the Lord, and may He give you times of joy as a family.
    Love, Aunt Connie

    Comment by Connie Huffmon — June 7, 2010 @ 4:06 pm


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