Brock Rocks

May 12, 2010

Filed under: Uncategorized — Vanessa @ 4:00 pm

Brock had a clinic appointment today to check bloodwork.  His AGC is really low again (288) and his platelets are really low (27).  We’ve made it throught the first half of the “delayed intensification” phase.  Praise the Lord!!!  The second half is due to start next Tuesday, but he won’t be able to start it until his AGC reaches 750 and his platelets reach 75.  The second half of this phase is really hard and includes some chemo that will bottom out his AGC again.  Pray that God continues to protect his body from the fungal infection while his AGC is so low.

Today is his last day of steroids for awhile.  He’s been pretty miserable the past few days.  Pray that he starts feel better and his mood improves once we stop the steroid.

Next week we have a meeting with a state-funded agency that provides speech and physical therapy inside the home.  Pray that everything goes well with that.  Brock has lots of developmental delays from being so sick for so long.  Before he got diagnosed in October he was walking.  Now he can’t roll over, can’t crawl, can’t bear weight on his legs, and certainly can’t walk.  He’s 18.5 months old and he doesn’t say any words at all.  The developmental delays are one of the hardest things for Jay and I to deal with (emotionally), especially since he was “normal” before all of this happened.  Pray that we’ll be able to get him the right therapy and that he’ll start to catch up soon.

Praises:
– Remember that Brock was having fevers almost every day for…ever?  Remember that we have to take him to the ER every. single. time. he has a fever over 101?  Ever since they did the surgery to remove part of the fungal infection from his lung, the fevers have decreased in frequency.  Praise the Lord!!  I really can’t tell you how nice it is to not have to go to the ER 4-5 times a week.
– Brock’s had issues with high blood pressure for quite awhile….so long that I can’t even remember exactly when he started taking blood pressure meds.  Maybe sometime in December?  Well, during this last hospital stay he had one night where his blood pressures were REALLY low – low enough that we were pretty worried about him.  But by the next morning they were back to a normal range and they’ve stayed in a normal range since then so we’ve been able to stop ALL his blood pressure medicines.  Thank you, God!

I need to go get ready to take Jaycie to church.  Thank you for continuing to pray for us!

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6 Comments »

  1. Thanking the Lord for you sweet precious Brock and trusting Him to keep you in His safe, secure and protective care.

    “When you pass through the waters, I will be with you; and when you pass through the rivers, they will not sweep over you. When you walk through the fire, you will not be burned; the flames will not set you ablaze. For I am the LORD, your God, the Holy One of Israel, your Savior …”
    — Isaiah 43:2-3

    ♥ ♥ ♥ ♥ *GOD LOVES YOU* ♥ ♥ ♥ ♥

    In His Love,

    Caterina
    C.O.L.E.’S FOUNDATION MD REP
    caterina@colesfoundation.org
    C.O.L.E. (Caring Openly, Loving Eternally) Prayer Team
    http://www.colesfoundation.com
    24/7 Prayer Line 888-365-COLE (2653)
    http://www.kidsunitetofight.com

    “There are many Americans who are clever and fearless, but the trouble is many are small children fighting an ugly disease.”

    Comment by Caterina Grove — May 12, 2010 @ 4:44 pm

  2. Dear God, I am so thankful that Brock is going off the hated steroids again. We praise only you Lord Christ for all the miracles you have brought to Brock, and continue to trust You for his every need. Please give Vanessa and Jay encouragement and hope for Brock’s developmental acheivements as You help him to regain curoisty and skills to move forward. Help and support this entire family as they travel their difficult road. In Christ’s Name and to His glory, Amen.

    Comment by Connie Huffmon — May 12, 2010 @ 9:19 pm

  3. I can’t imagine how weary you all are, but as you said, things are so much better than before. We’ll all continue to pray that he will quickly get back to where he needs to be developmentally. It’s a miracle he’s still here, so God’s not going to stop working now!!

    Comment by JoAnna McCall — May 13, 2010 @ 7:25 am

  4. Hart Family, so relieved to hear from you. After all the toronados, I was not sure if that affected you guys or not. My Bible study group asks about Brock’s status every week. I continue to pray for Brock’s complete healing. Praying Brock will be able to continue on to phase 2 and he will recover quickly from the effects of the treatment. Praying for wisdom in developing a successful plan for his physical therapy.

    Love to all, Linda

    Comment by Linda Heikkila — May 13, 2010 @ 7:44 am

  5. Celebrating the small victories with you! We will continue to pray for his AGC to go up to provide protection for his sweet little body from that nasty fungus.

    Comment by Chrissy Crowder — May 13, 2010 @ 8:29 pm

  6. I know what you mean about the developmental delays. One day everything is fine, they are normal healthy children, in an instant everything “normal” is gone. I’ve been wondering about the long term effects for a while, but we really don’t have a choice. You can’t compare Brock to other children his age (i should listen to myself). He’s fighting this disease everyday, hopefully as young as he is he’ll catch back up soon. Hang in there, i know it’s hard, it’s heart breaking, and so unfair. We keep you all in our prayers, he’s a special little boy and so strong.

    Comment by Britta Kiesel — May 14, 2010 @ 8:12 am


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