Brock Rocks

March 25, 2010

Big Decisions

Filed under: Uncategorized — Vanessa @ 11:09 am

We met with our oncologist yesterday to discuss what we’ll do next with Brock’s treatment plan.  He’s due to start a phase called “Delayed Intensification.”   It has a lot of the same drugs that he got during the Induction Phase (the first three weeks after he was diagnosed) plus some new ones that he’s never had before.  It’s pretty intense chemotherapy that would last 8 weeks, with the last 4 weeks being harder than the first. 

There are 6 oncologists in the group and they haven’t really come to a consensus on whether or not we should do Delayed Intensification.  One side thinks we need to do it because if we don’t then he’s at a greater risk of having a relapse.  About 15% of standard risk ALL patients that don’t do DI have a relapse.  (And remember – Brock has some markers that make him standard risk and some markers that make him higher risk)  The other side thinks we shouldn’t do it because the chemo is so intense that it would wipe out his immune system and the fungal infection would get (potentially fatally) worse.

We didn’t make a decision about DI yesterday because all of the oncologists were in agreement that he needs to have surgery on his lung first.

The last CT scan showed that the area of infection in his lung has consolidated down to about the size of a clementine orange.  (It also showed that his liver was clear, his kidneys looked ok, and his spleen still had a considerable amount of infection…but we’ll worry about that later)  The area that is infecting his lung has walled itself off…meaning there is still active infection inside but the antifungals that he gets everyday can’t reach it.  The only way to get rid of the infection is with surgery.  Most of the infected area is in the pleural cavity, but there is a part that’s attached to his lung (meaning they’ll have to remove part of his left lung).  They have to make an incision and go through the ribs.  He’ll need to have a chest tube after the surgery and possibly be on a ventilator for awhile.  It will be, by far, the most extensive and most painful surgery he’s had.  (It will also make surgery number 7 in less than 6 months).  Our surgeon is WONDERFUL and I feel very confident with Brock in his hands.  We haven’t scheduled the surgey yet.  Brock got chemo yesterday so we’ll have to wait for his counts (immune system) to recovery first.  It will most likely be right before or right after Easter. 

It will take several weeks to heal from the surgery and then we’ll make a decision about Delayed Intensification.  Please pray that God would give us and the doctors the wisdom to make the right decisioin.  We’ve known since November that treating the fungal infection and the leukemia was going to be a difficult balancing act, but until now we haven’t had to make any big decisions regarding treatment.  To have the weight of a decision that might adversely affect Brock’s health on our shoulders is very overwhelming, to say the least.

So, to sum things up: surgery in the next 10-14 days and chemo a few weeks after that, but we still don’t know what type.

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22 Comments »

  1. Hart family you are doing the right thing in letting God guide you in these decisions they are some really big ones and without His guidance I do not know how you are going to make them… Praying for comfort and peace for all of you…

    Comment by linda morris — March 25, 2010 @ 11:21 am

  2. V – I have never been more speechless than I am in my comments to your posts. All the wisdom in the world, all the money in the world, all the stuff in the world has no bearing in this situation. That ‘stuff’ we rely on every day to get us through, simply doesn’t apply. So, with that, I say – you’re relying on the right ‘stuff’, our Lord and Savior. Brock’s Warriors are with you – all the way. Love you.

    Comment by Crystal — March 25, 2010 @ 11:24 am

  3. I’m very sad that Brock’s condition is such that you guys are faced with these monumental decisions. Your dedication and loving commitmend have been amazing, and Brock’s medical care has been fantistic. With all that in place, you’ll make the right decisions, however difficult they may be. Brock has proven himself a fighter; if anyone can beat this, he’s the guy to do it. And if anyone can help him through, it’s the family that has cared for him so well. Know that we’re all out here pulling for you and hoping for the very best.

    Comment by Mac Troy — March 25, 2010 @ 12:11 pm

  4. Oh how my heart aches for you all. God is in control of this situation and God’s love surrounds you all. I do not have the right words to say but know my family constantly has your family in our prayers. I would love to help you if you need anything, lots of love.

    Comment by Chris, Lindsey & Oaklee Wren — March 25, 2010 @ 12:27 pm

  5. Hey girl- still praying for you guys and these huge decisions that you’re all making right now. I heard the new song by Christy Nockels and thought of you. The chorus says-

    How high, How wide, No matter where I am
    Healing is in Your Hands
    How deep, How strong, Now by Your grace I stand
    Healing is in Your Hands

    Please know that your faith is such a testimony of God’s faithfulness. I admire you so much.

    Comment by Stephanie — March 25, 2010 @ 12:35 pm

  6. May God give you and the doctors wisdom and peace about this decision. Let Him take the weight off your shoulders my friend. We will be praying for you and Brock’s surgery. I hope they can clear out this infection once and for all. What a beast it has been! We love you!

    Comment by Liv Wilson — March 25, 2010 @ 12:44 pm

  7. All I can say right now is that I am praying for you, Brock, your family, and the doctors.
    Hugs to you. Stay strong.
    Christa

    Comment by Christa Marik — March 25, 2010 @ 12:50 pm

  8. Vanessa, your Dad told me yesterday of Brock’s upcoming lung surgery. I’m so sorry he has to endure yet another surgery. I
    pray the Lord will give you peace and confidence in these decisions.May grace be with you and tiny Brock prosper.
    Love, Aunt Connie

    Comment by Connie — March 25, 2010 @ 1:27 pm

  9. We’re praying for peace and wisdom with the upcoming decisions. Love you guys so much.

    Comment by DeLyn — March 25, 2010 @ 1:31 pm

  10. i cannot imagine the weight you and jay are feeling under these decisions. praying for wisdom, guidance, peace and healing. i am speechless (and that NEVER happens) when trying to imagine the decisions you are facing. love you, van. brock is so blessed to have you as his mama.

    Comment by mrs. darling — March 25, 2010 @ 2:25 pm

  11. Reading this news overwhelms me, so I cannot even imagine how you are feeling. I do know that with God’s guidance, whichever decision you make will be the right one for Brock. Continuing to pray daily for peace, comfort and healing. In Christ, by Him and through Him all things are possible. Lots of love and prayers.

    Comment by Susan Veatch — March 25, 2010 @ 6:49 pm

  12. DEAR HART FAMILY:

    I AM TOTALLY SPEECHLESS, AND MY HEART GOES OUT TO ALL OF YOU. BUT, YOU ARE DOING THE RIGHT THING BY LETTING GOD GUIDE YOU, THE DOCTORS IN THIS VERY DIFFCULT DICISION THAT HAS TO BE MADE. YOUR STRENGHT IS AMAZING AND I PRAY THAT GOD WILL CONTINUE TO GIVE YOU THE STRENGHT, WISDOM, COURAGE, AND PEACE IN THIS TIME. MY PRAYERS ARE WITH YOU.

    DEBORAH

    Comment by Deborah Smith — March 25, 2010 @ 8:15 pm

  13. Praying for wisdom and guidance for you and the physicians. God bless you all!

    Comment by Tanni — March 25, 2010 @ 8:48 pm

  14. You guys have made wonderful decisions this far and I know you will do the same now. Your faith and trust in God will guide you once again! We are all praying for wisdom and guidance for you and the doctors. Brock is so adorable! I love the new pics!

    Comment by Jenny Rackley — March 25, 2010 @ 10:23 pm

  15. Wow. That sounds like a pretty intense surgery on your little guy. Praying that our Heavenly Father will let you feel His presence during this difficult decision making process. That he will give you and the doctors clarity of Brock’s treatment. I am even boldly asking our Heavenly Father, the mighty physician, to completely heal Brock and allow him to live cancer free.

    Comment by Valerie Olmstead — March 26, 2010 @ 2:48 am

  16. Praying for you guys continually, especially for wisdom and continued healing. I read this almost as soon as you posted, but didn’t want to appear to be a cyber-stalker, so I waited to reply and then time got away from me and it is a new day. I am so thankful that God has you in His hands and that you realize that as well.

    Comment by Melanie — March 26, 2010 @ 10:24 am

  17. Dear Vanessa,
    I’ve read your most recent posts over and over and I wish I had the “right” words to say. When I read the post about your evening out to eat and how Jaycie was so excited I remembered those treasured time we also had when things were “normal”, if only briefly. There are few things better than being with your kids, enjoying each other. I am grateful that you all had such a fun night and I continue to pray for more. When I read your November 18 post I just wanted to reach out and hug you. The pain that come with hearing such hard news is all too familiar and I can only imagine how hard this road must be. I want to encourage you that we indeed serve a big God who can do miracles. We were witnesses to so many during our time with Anne Marie. And I mean big miracle – we saw things done that only God could have done. We didn’t get all the miracles we had hoped, but my view of God and His sovereignty and power has changed. I have seen first hand what God can do. Mostly I have seen just how much He loves me and have seen His tender care. I continue to pray for Brock and for COMPLETE HEALING. I am asking the Lord for a big miracle for Brock and for strength and peace for you and Jay. Thanks for these updates, that may be hard to write,as it shows us all how to pray for you all and Brock.
    Much love and many prayers!

    Comment by susie — March 26, 2010 @ 11:00 am

  18. I have just learned of your site through COLE’S Foundation. I pray for discernment for the decisions you must make in the next few weeks/months. I ask Him to please give you peace, comfort, strength, and rest during this difficult journey. May He bless and keep you in the palm of His hand.

    COLE’S Prayer Team
    Janet
    http://www.colesfoundation.com

    Comment by Janet — March 26, 2010 @ 3:14 pm

  19. –i am asking for gods continued love, healing, strength, protection and guidance to rain down upon all of you in every way that you need and want–

    Jaycie Jo–how are you today? do you go to school? are you working on your numbers and letters? i bet you probably love to hangout with Brianna and Katlynn. i have not seen them for a long time. keep bein a great big sis!!

    love kim and bones

    Comment by kim mcdermet — March 27, 2010 @ 10:52 am

  20. Hart family, I just wanted to tell you that I have been praying for your family daily and thinking of little Brock constantly. I pray that God will completely heal him and work miracles in his little body. I pray the doctors will have the knowledge and wisdom to treat Brock’s fungal infection and the cancer at the same time. I pray for you, Jay, and Jaycie; that you all will have the strength and wisdom to make the best decisions. I also want to thank you for opening my eyes. I have to admit that after my father passed away two years ago, I kind of lost my relationship with God. Not necessarily “lost”, but just did not attend church like I did and did not talk daily with him like I should. I started following your post back in November or December after a student of mine spent months in the hospital after getting the swine flu and having numerous complications. The doctors called him a “miracle” and did not expect him to live. I found your caring bridge site through their caring bridge site and have followed you since. I have to say that through your daily posts and experiences, it has drawn me closer to our wonderful God again; and I thank you for that. Even though I have never met your family, I feel so close to you and Brock. Please know that you are in my daily thoughts and prayers, and you have touched so many people. I love you all so much.

    Comment by Jenny — March 31, 2010 @ 10:47 am

    • Thank you so much! God definitely uses people like you to bless us through this situation!

      Comment by Vanessa — April 1, 2010 @ 6:34 am


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