Brock Rocks

November 18, 2009

Nov 18, 2009

Filed under: Uncategorized — Vanessa @ 10:52 am

Today brought some of the worst news we’ve had so far.  They’ve identified the type of mold as ‘aspergillus.’  It’s a very invasive type of fungus that isn’t very responsive to treatment.  The ICU doctor that is attending this week is a wonderful Christian woman who has been very open with us about Brock’s care as well as about her faith.  Today she said to us “It’s possible that Brock will survive, because we serve a big God who can do miracles…but it’s very probable that Brock won’t make it.”

The CT scan from last night showed some abnormalities so they are considering doing an MRI to see if it’s fungus or cancer that’s showing up on the CT.  However, we might not do the MRI at all because no matter what it is – it won’t change how we treat him and there’s a risk that he’ll have to be put back on the ventillator if they do the MRI (b/c of the sedation they give him).  Jay and I would like to keep him off the ventillator as long as possible so that we can hold him.

The best news of the day is that the bone marrow aspiration and spinal tap showed that there were no leukemia cells in either of those places.  It is possible, however, for him to be in remission in his bone marrow, but to have leukemia in other places (like his eye or the tissue on his knee where they did the biopsy).

We are begging God for a miracle.  We’re stuck in a hard place, because treating the cancer with chemo would cause the fungal infection to take over, and he would die.  If we treat the fungal infection and ignore the cancer, then the cancer will take over and he would die.  It’s just not possible to treat both at the same time.  We’re asking God for wisdom for us and everyone involved.  We’re thanking him that his bone marrow continues to be in remission and we’re begging that any cancer stays away long enough to treat the fungus.  Even if that happens, we’re realistic about the fact that the chances of curing the fungus are very very slim.

Thank you all for praying with us.

A charitable fund has been established in Brock Hart’s name at Tinker Federal Credit Union.  Donations can be made at any TFCU branch.

November 2, 2009

Nov 2, 2009

Filed under: Uncategorized — Vanessa @ 9:21 pm

I keep trying to start paragraphs and everything comes out jumbled so I’ll attempt bullets instead.  (blame it on my analytical “math” brain)

– he’s still very, very swollen.  (this is what’s causing him to not be able to breathe)  they’re giving him some medicines to try to reduce the amount of fluid in his body.  i’m praying it works, despite the fact that it hasn’t been very successful in the past.

– if it doesn’t work then they’ll re-visit the idea of putting him on dialysis.  however, they did tell us that it’s “just a theory” that the dialysis would help pull out the fluids.  there’s not a guarantee that it would work.

– they gave us 2 reasons for what could be causing his liver and spleen to be so enlarged:
1 – some type of bacterial infection in those organs.  if that’s the case, there’s not much more they can do besides what they’re already doing (giving him really strong antibiotics and praying his white cells go up)
2 – the leukemia might’ve returned.  when he was diagnosed, one of the symptoms he had was an enlarged liver and spleen (though it wasn’t nearly as big as it is now).  they did another bone marrow aspiration and biopsy today to see if there were any leukemic cells.  (there were none at his last bone marrow aspiration 3 weeks ago)  i’m not sure how long it will be until we get those results.

– out of those 2 possibilities, they’re leaning toward it being some type of infection based on the fact that the last ultrasound they did of his liver/spleen showed a few “spots” on them, which usually indicates infection.

– they’ve put in a feeding tube and are giving him breastmilk (yay!) through it.  finally, there’s something i feel like i can DO for him.

– this afternoon his 02 saturation levels have been dropping to around 88-91%.  pray that they would get back up to 100% and stay there!

Praises:
– there was no internal bleeding
– that he’s no longer hurting or struggling for each breath
– that we have so many people supporting and praying for us.  (there is no way i could adquately expressed how overwhelmed we are by the love and support from friends and even strangers)

Prayer Requests:
– that his swelling would go away!!  this is the biggest concern right now b/c 1)there’s not really a good way to treat it and 2)it’s what’s causing him to not be able to breathe and require a ventilator.  please pray that God would miraculously reduce the swelling in every area of his body.
– that the swollen liver/spleen isn’t a symptom that the leukemia has returned
– that his body would continue to make WBC so that he has something to fight with.
– that his body would be getting sufficient oxygen from the ventilator.
– that Jaycie would feel loved and secure during this time.

November 1, 2009

Nov 1, 2009

Filed under: Uncategorized — Vanessa @ 9:19 pm

This is the hardest update that I’ve had to write so far (and hopefully the hardest one I’ll ever have to write).

This afternoon Brock’s breathing became very labored.  They were concerned that he would get too tired from having to work so hard at breathing and that he might crash.  They turned his vapotherm up, hoping that it would help him breath easier, but it didn’t take long to know that he was going to need some more assistance.  The doctor decided that he really needed to be put on a ventilator.

They think the reason he’s having such a hard time breathing is because 1) there is some fluid in his lungs and 2) his abdomen is VERY swollen and distended.  They know his liver is very enlarged.  We’ve spent most of the day trying to figure out what exactly is causing his belly to be so big and they were thinking it was because of extra fluid in his abdominal cavity.

So one of the things they wanted to do while they were putting in the intubation tube is to also put in a central line.  They would use that central line to hook him up to dialysis in order to get rid of the extra fluid.

The intubation tube went in fairly well, but when the doctor was putting in the central line his belly suddenly got even bigger and his hemaglobin level dropped.  Those two things made us VERY concerned that he was having some internal bleeding.  She ordered another x-ray and ultrasound of his belly.  After a very tearful and stressful hour of waiting, we got those done.  From what the doctor saw on the ultrasound she said she was “95-99%” sure that there was not bleeding in there.  Praise the Lord!

Brock is definitley no where near being “out of the woods.”  He needs a CT scan done to see if his kidney, liver, spleen, etc is swollen.  But he’s not stable enough to take downstairs to do the scan.  They’re hoping he will be well enough in the morning to do that.  They’re also giving him blood transfusions all night long and checking his hemaglobin level every hour to make sure he’s not bleeding somewhere.  There are also concerned about keeping his blood pressure, heartrate, etc in the correct ranges.  Brock is completely sedated and on a paralytic drug and will stay that way until he’s off the vent.

We’re praying that he stays stable overnight and that his belly doesn’t continue to swell (which is a very real possibility).  We’re thankful that there appears to be no internal bleeding.  We’re praying that his blood pressure will stay within the normal ranges and that he will be well profused (getting enough blood flow to his extremeties).  We’re praying that they will know EXACTLY what is causing his swollen abdomen and that it will be something that is treatable.

Thank you for praying along with us.

Nov 1, 2009

Filed under: Uncategorized — Vanessa @ 8:16 am

– chest x-ray continues to show improvement.

– they’re trying to wean him off the vaportherm.

– his belly is still very swollen and distended.  they did an ultrasound of it to see what was causing it.  no results yet.

– his bottom is even worse (if that’s possible).  he has some really deep ulcerations that i’m sure are causing him a lot of pain.

– his WBC has stayed at 300 for the past 24 hours.  yay!

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