July 21, 2011

So the mysterious skin thing ended up being ‘staph scalding skin syndrome.’  It was horrible and I pray he never gets it again.  I didn’t take pictures of the worst days, but it looked like his face and hands had been burned.  And then the skin started peeling off and bleeding.    But thankfully he is MUCH better now.  Almost completely back to normal.

On Tuesday he had an ultrasound to re-check the blood clot in his leg (from last April) and Yay! because it’s gone but Boo! because we still have to keep giving him shots of lovenox for 3 more months to make sure it doesn’t come back.  I’m hoping they doctors will tell us soon that we can decrease his dose to just once a day instead of twice a day.

We also met with the local public schools this week to discuss transitioning him from the state funded early intervention program to the public school program (which has to be done when he turns 3 in October) in order to keep receiving services like speech and physical therapy.  We will do a series of developmental tests on him next month to see which services he qualifies for.  The options are a wide range from just getting speech therapy at the school once or twice a week, to being placed in the developmentally delayed preschool classroom 5 days a week.  Pray that the tests give clear answers as to what his needs are and that Jay and I would have wisdom in deciding what therapies are best for him.

Brock’s having his first sleep-over at Grammie and PaPa’s this weekend so pray for no fevers and an uneventful stay!

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